fuck cancer

Best wishes in recovery, onimo.

Yes, agree with everything said, hopefully these are all temporary and you are back to normal in the very near future x

onimo, your equanimity in the face of all those symptoms is astounding. I will echo what others have said, that whatever struggles you had in typing out your posts, they are perfectly fluent and coherent. I hope you recover soon and completely!

re the lip sync thing, it’s something our brain has to work on all the time because the senses report info at slightly different times (e.g. vision is a bit late, and it varies between night and day) and it can slip out of sync a bit under normal conditions. So I’d just think of that as a sign your brain is under a heavy workload - which it sure is, given the amount of re-routing that recovery involves.

Onimo and I so struck by your insight into your symptoms and your knack for describing them! "Not My Leg" especially. There is a book in this should you ever want to revisit this experience, I would love to read it!

hey Onimo I’m just a random guy on the Internet but wanted to send you all good wishes for your recovery, and also say thanks for sharing your insights and experiences

a good friend of mine had a tumor removed not long after you did - he’s still a bit confused - reading your posts has really helped get a (broad) sense of the kind of things that might be going on for him

Hullo!

Most of my weird symptoms have gone or improved in the last couple of weeks so most must have been after effects of the surgery. My leg is my leg again!

I had a horrible panic a few days ago when I couldn't read for an hour or so and convinced myself it was permanent.

I started a 10 week drug trial on Friday and started 6 weeks of daily radiotherapy yesterday. I felt rotten yesterday (brutal tiredness and nausea) and I was struggling to face months of feeling that way but today is much better so it's a bit easier if I know it won't all be bad days.

Glad some of the troubling symptoms resolved and you are feeling more up for the fight. Wishing you the best.

That’s great to hear about the symptom resolution onimo, hoping the treatment goes well for you

When I had chemo/radiation as a kid, my favourite thing to eat was tapioca pudding. That or scratch-made custard will see you right, Onimo.

Good to hear good things from you onimo

When I had chemo/radiation as a kid, my favourite thing to eat was tapioca pudding. That or scratch-made custard will see you right, Onimo.

― scampopo (suzy), Tuesday, 12 January 2021 12:27 (twenty-eight minutes ago) bookmarkflaglink

I remember my mum giving me tapioca pudding when I had measles as it helped relieve mouth ulcers so that makes sense for radiation too.

I don’t remember mouth ulcers but I do remember not wanting to eat a lot of different foods because they made me nauseous. I couldn’t bear fat on meat, dark poultry meat, egg yolks, mayo, canned tuna, squash, yams, or Boston baked beans, plus I couldn’t have raw carrots (which I loved) because they gave me doubled-over stomach cramps. I still won’t eat squashes or canned oily fish apart from anchovies.

positive news! great to hear!

Great stuff Onimo!

Most of my weird symptoms have gone or improved in the last couple of weeks so most must have been after effects of the surgery. My leg is my leg again!

Hooray for correctly-owned legs! Thanks for keeping us posted onimo, glad you're recovering well.

welcome back!

Good news. :)

yay for disappearing symptoms

glad to hear it onimo!

Wonderful to hear!

Yep, keep us updated, onimo!

good stuff

Glad to hear that, man!

Onimo! <3

Yay, onimo!

that’s so good to hear, onimo, wishing you strength and peace and plenty of good days during your treatment

go onimo!

Good to hear from you, onimo!

As I've previous said, chemo.rad is different for everyone and every targeted body part, but believe it or not, probably the worst part of radiation for me was having to go in to an office...every...day...for...months...to have radioactive beams targeted at my body. The actual radiation itself is whatever, and I was lucky to not have many bad side effects— but the fact that one is dragging oneself into a basement room to have this wild shit done to one's body for months is much more harrowing than I ever imagined. By the end, I'd walk into the waiting room and I'd just want to smash the fucking TVs.

Anyway, please keep us updated, and sending you much good feeling <3

Great news onimo! <3

glad to hear you're feeling better onimo and thanks for letting us know!

I know 87 is not exactly a life cut short*, but two months ago my wonderful aunt Jeanie felt some odd abdominal pains, one month ago she was diagnosed with inoperable pancreatic cancer, and last Sunday she passed away at home. I guess this is just as much a Fuck Covid post - since I live far from Minnesota now, and we're in a pandemic, I did not get to see her, and it's sinking in that I never will see her again. She was a fucking legit midwesterner like they don't make anymore. RIP Aunt Jeanie.

https://www.ohalloranmurphy.com/obituary/Jean-Brookins

*my mom is 92 though and this is her baby sister ffs, so yeah, too soon

That's rough about not getting to visit, Jon, and I'm sorry for your loss.

My condolences, Jon. RIP.

Sounds like an extraordinary woman, based on that obituary. Condolences.

Sending condolences Jon.

And yes, fuck covid for making everyone's grief worse

So sorry, Jon.

condolences to you and your family jon

posi news - my friend Mike, who I've posted about elsewhere, was previously diagnosed with stage 4 colon/liver cancer but had shrinkage from the many bouts of chemo.

they determined that surgery might be possible, and he had to fight through a lot, including getting a stent due to 99% blockage in an artery that he wasn't aware of (which had it gone undiagnosed, might have lead him to die on the surgery table). the surgery was a success today and he is now NED (no evidence of disease).

I'm aware that this does not mean he's cured, but it's the first bit of good news this dude's had in over a year.

fuck cancer, indeed, and never come back! stay away!

the surgery was a success today and he is now NED (no evidence of disease)

I'll take it in both senses of the word. Great to hear and best of luck to him.

yeah he immediately started writing reviews for All Music from his hospital bed too! ;)

(and thx)

Oh so HE'S the guy.

Lol and awesome to the last several posts. Fuck cancer.

Fuck cancer and that is great news!

fuck cancer, indeed, and never come back! stay away!

^^^
This this this

Good news indeed Neanderthal

Still going!

I'm now just past halfway on my 6 weeks of radiotherapy. My hair is falling out in big chunks around the zap zone. It's quite tender but not too painful.

I went through a heavy emotional and physical slump at the end of my 2nd week but I'm picking up now as they've put me back on steroids which are helping with p much all my issues.

No new weirdness to report. My brain is still a bit broken - I type wrong words all the time and sometimes take a conversation down a logical wrong turn. I also can't deal with directional arrows which is great for wandering around hospitals!

I'm getting better at reading but still haven't committed to reading an actual book yet.

I'm mentally blocking all the 'then what?' stuff until my next proper set of scans as I was killing myself with the pointless speculation. Attempting to be all 'que sera sera' in the meantime.

that is the best way to be imo! great to see yr progress onimo, it gladdens mine heart <3

<3

Keep it up, onimo.