fuck cancer

<3 tabes!!<3

update: latest chemo doesn't work. cancer has spread in bones and liver. I'd allowed myself to get my hopes up a bit, but we did know that it was likely the only reason my wife feels better lately is because they put her on steroids a few months ago, and tests have confirmed that is why, not because the chemo was doing anything.

they are out of options. the only thing left is IV chemo, which would severely reduce my wife's quality of life, and she said she wouldn't do it, but now she says she might try it, because she's not ready to go yet. the hospital are going to do a biopsy, because apparently there is a remote chance the cancer could've mutated into some other form that might be treatable by other drugs, but that feels like they are clutching at straws, it is not very likely that's happened

as always wish the best for her, CP

oh fuck fuck fuck cancer. desperately sad news, CP, and I'm so sorry.

oh CP i am sorry. nothing but love for the two of you <3

Well damn. Hoping for the best, somehow.

A lot of love for you both, man.

So sorry, CP

so sorry to hear, hope you have better news soon

oh man, much love cp

CP I wish I could hug you.

So sorry to hear that, CP.

I'm very sorry CP

sorry to hear, CP. sending love to both of you

Sending loads of love to you and Mrs CP.

So bad for you both. I hope if she goes for chemo it’s not as bad and debilitating as expected.

I am so sorry, CP. Wishing you and your wife the very best.

Really sorry to read this CP, hoping for the best.

:( i'm sorry. she seems to have been hanging in there very tenaciously though in the face of both cancer and medical incompetence so i hope that is a source of strength. may you both endure the next step

So sorry to hear that. All best wishes to you both.

Oh fuck. So much love and sympathy for you.

Much love to both of you

so my wife has decided she doesn't want to have IV chemo as it's too debilitating, would only prolong her life by months and she doesn't want to spend the rest of her life in a hospital ward

yesterday she had a biopsy procedure done on her liver to test if the cancer has mutated which might open up new chemo options. because she doesn't want IV chemo, last week she emailed the Macmillan nurse asking what these chemo options are, because if it's IV-only she doesn't want to have to go through the biopsy for no reason. she got a response back from the nurse saying she would talk to the oncologist. this week my wife chased up the nurse again. no response until today, as in after the fucking thing's been done already, saying yes it's IV only, so don't do the procedure if you don't want to.

so my wife just had someone drill 2 holes in her liver for no fucking reason at all. more excellent work from our outstanding National Health Service

ah christ

I'm sorry to hear every part of that, man. Take care and love to you both.

that’s terrible, and i’m really sorry for both of you having to go through this

Stay strong, CP.

I’m really sorry, CP.

I'm fuming on your behalf CP. as if cancer isn't shit enough on its own.

we got the results of the biopsy yesterday. the results were there were no results. they didn't get a big enough sample. but there were no signs the cancer has mutated. so they're taking it as no change. this is what we were expecting - it was a remote chance and we knew that up front, and didn't really change our circumstances at all. so that's it, no more treatment, end of chemo. which my wife is happy about. just palliative care from now on. and the hospice nurses are much more on the ball than anyone at the hospital. the oncologist said he couldn't find any fault with her decision but the door is open if she changes her mind and wants to go on intravenous chemo, but there are very few options. one of the drugs he had in mind she's already had an allergic reaction to.

it looks like we get through this year, which a year ago I wasn't sure would happen. it's progressing pretty slowly at the moment. this could change at any moment though.

I seem to be missing an unhinged rant about the state of the NHS so I'll just say the Macmillan nurse didn't say a word during this, not even to say she was there if we needed any help. which we would've probably just laughed at anyway. there is no position more useless in the NHS than the Macmillan nurse. they're supposed to be there for support but provide none.

Colonel Poo you and your wife have my sincerest wish for days ahead of comfort, peace, togetherness, and relief. And fuck cancer.

Best wishes to you and your wife, Colonel.

Wishing you guys a happy and peaceful time together for as long as possible. Fuck cancer by enjoying life.

aye, all the best to you and your missus CP.

My mum's twin sister has just found out she has something like what A A Gill described as the "full English breakfast of cancers" shortly before he died and it isn't looking good for her. And in the same week my uncle with an aversion to seeing doctors nearly died with urine and blood leaking into his stomach because of his undiagnosed prostate cancer. And then my mum who is the only one of her clan with a driving license to help her siblings get places at bad times like this, slipped on a rainy surface and broke her arm last week. Fucking hell!

Love to you and your wife, CP - and good luck to the clan calzino, too.

<3 <3 <3 cp

thanks everyone and echoing AF to you calzino, hope you are doing OK

sending love and best wishes to you and your wife, CP

and best wishes to all your family too, calz

Much love to all! x

Wishing you all the best, CP (and the calzinos too).

Good wishes to everybody dealing with this stuff <3

love to you & yr wife CP, and calzino

I'd better do this now while I'm in an OK mood.

my wife's been going downhill since around Christmas. she can hardly walk now and was frequently in pain through the night. she got prescribed valium on top of the morphine and about 10 other medications she has to take. it didn't help much so a GP came and doubled her morphine and more than doubled the valium. she pretty much slept for the next 2 days then was only awake for a couple of hours a day for the next couple of days after that. it still wasn't working and she was in pain all the time but now she was also having problems with her memory and some vision problems, which were almost like dementia at times. I started to panic that it was spreading to her brain because I'd seen this happen with my uncle 3 years ago just a couple of months before she was originally diagnosed. she was thinking the same thing, but it did start with the increased medication and I've since been reassured by a couple of doctors this is because of drugs, not brain mets.

anyway, despite them drugging her up she was still in pain all the time, it wasn't helping with that really, so I was lost for what to do, calling round various divisions of the NHS and the hospice, we had the emergency nurses out twice last week, then a GP came who seemed to know a bit more what he was doing, said the previous GP didn't know what to do (this is a bit of theme isn't it) so just upped everything but actually they should be changed her medication instead of just all sedation all the time. it was a bit too late though and she was in pain the next night as well, so on Monday I called the hospice and they said to bring her in. so she's been at the hospice since Monday. they are experimenting with different drugs to see if they can actually target the pain rather than just knocking her out. there's been some success with pregabalin and lorazepam. she's probably there for another week, barring miracles or if they still can't get it sorted by then. but I'm a bit relieved after what looked like a rapid downturn. it's not going to be good news but if they can get the pain under control at least that's something. but I think time is running out.

tbh I've been absolutely fucking exhausted the past couple of weeks, had a cold just to make everything worse. at least while she is at the hospice I know that if she wakes up in agony at 4am there is someone there to help her.

strength to you both cp

Nothing useful to say but I and lots of others here are wishing you some good amid all this.

sometimes life is so shit CP - all the best to you and your partner.

Really sorry CP - take the time to get some rest for yourself and know that she is in the right place atm.

thoughts are with you and your wife, CP.

for all the trouble they've caused people through their abuse ime, opiates frequently don't seem to cut the mustard when people are really suffering.

Wishing you and your wife the best, CP.

xp

tbf I think it was the valium that fucked her up more than the morphine.

of course now she's just on a different benzo but she's more lucid over the last couple of days. she still mixes up words and has double vision (although that's a side effect of pregabalin) but she can remember what we talked about 5 minutes ago