Shakey Mo's thread of misery

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don't get me wrong tho just1n3, noise exposure/hearing loss is a common cause of tinnitus. in my weirdo case tho, it's not related.

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Monday, 18 March 2013 18:51 (five years ago) Permalink

Hm, yeah, I was wondering if you found it helpful. I know folks who swear by them, but have had to struggle with finding the best frequency/sound.

xp

Darth Magus (Tarfumes The Escape Goat), Monday, 18 March 2013 18:52 (five years ago) Permalink

Xp yeah I know yours was just out of the blue, but it got me thinking way harder about this stuff than I had before, I just don't want him taking it for granted just bc its ”fun” to play loud and without earplugs.

just1n3, Monday, 18 March 2013 20:22 (five years ago) Permalink

Makes total sense that sleep is part of the key to adjusting. I know that even minor things like the floaters in my eyes become much more pronounced when I'm sleep deprived, so it plays that tinnitus would become more aggravating/less backgroundy

I'm glad you're finding some kind of normalcy, shakey! that makes me really happy for you.

set the controls for the heart of the sun (VegemiteGrrl), Monday, 18 March 2013 20:24 (five years ago) Permalink

fuck, another sleepless night. I seem to have bouts of these recurring every few weeks. just the worst. need better meds but have to wait until my next appt in April...

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Wednesday, 20 March 2013 15:42 (five years ago) Permalink

arggh no sleep, I am losing it

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Friday, 22 March 2013 15:53 (five years ago) Permalink

Oh man, sorry to hear. No adjustment in meds?

Darth Magus (Tarfumes The Escape Goat), Friday, 22 March 2013 15:56 (five years ago) Permalink

Kaiser psych nurse just told me to take more of the trazodone, which doesn't seem to be doing much. find myself resorting to the ambien each night, but that only puts me out for a few hours now. and then I can't get back to sleep. which is weird cuz just last week I was sleeping better with a lower dose of the trazodone... I dunno what's going on with me, I feel crazy. I just know what I have now isn't working consistently.

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Friday, 22 March 2013 16:07 (five years ago) Permalink

it's like this self-perpetuating cycle of anxiety about sleeping, combined with the tinnitus, just won't let my mind switch off and go to sleep

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Friday, 22 March 2013 16:11 (five years ago) Permalink

I've heard that writing things down before you go to sleep is a good way to turn off your brain; dunno how well that'd work when the anxiousness is audible, but could be worth a try.

Darth Magus (Tarfumes The Escape Goat), Friday, 22 March 2013 16:33 (five years ago) Permalink

had an amazing experience at the ENT just now with aero jr - they're checking his hearing (just standard workup stuff) and what they do is play a tone and then after he looks in the direction of the tone a light goes on above it with a little stuffed animal. (pos. reinforcement for looking in the right direction, I figure.) he's getting them all and then at one point he looks to the right when there's silence in the booth, and I think, aero jr., please only look over in the direction when you hear a tone or it makes it hard to measure, only then the light goes on, and I say to the aud tech: "was that 4k?" and she smiles and nods. just absolute total nothing for me in the right ear at 4k. lol at loud music, A+ 4k eradicator would mosh again

not feeling those lighters (underrated aerosmith bootlegs I have owned), Friday, 22 March 2013 17:07 (five years ago) Permalink

well they've given me a prescription for seroquel now

xp

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Friday, 22 March 2013 17:08 (five years ago) Permalink

pitch 4k eradicator

kinder, Friday, 22 March 2013 17:12 (five years ago) Permalink

ugh totally going through the pharmaceutical grinder here... the seroquel helped me get to sleep but the side effects were awful, felt like I'd been hit in the head with a hammer the day after, just totally slow and groggy. so stopped after two days. now they had me try a different benzo/sleep drug last night, restoril, which resulted in probably the best night's sleep I've had since this began, but this morning I'm super-agitated and hyper. I have an appt with BOTH therapists Thurs am to try and find some long-term solution that will help me sleep without heavy side effects. but I just feel totally discombobulated, going through so many drugs... when will I ever feel normal again :(

his girlfriend was all 'ugh and he wears a solar backpack' (Shakey Mo Collier), Tuesday, 26 March 2013 18:34 (five years ago) Permalink

so now I am on remeron. so exciting. actually it's been good - my sleep is better, altho I still wake up multiple times during the night. the difference being now I can actually get back to sleep with no problem afterwards. so regular sleep has helped me be less crazy/out of it during the day, which has made the tinnitus easier to deal with. I seem to be going for longer periods where I don't think about it at all now (and by longer periods I mean, like, 15-30 minutes) but that's some improvement. And I don't feel constantly stressed out w/chronic back pain... so this is all good but progress is slow.

four Marxes plus four Obamas plus four Bin Ladens (Shakey Mo Collier), Monday, 8 April 2013 18:49 (five years ago) Permalink

one month passes...

so I am now back to sleeping 8 hrs a night. huzzah! I have also resumed pretty much all my regular habits (playing music, smoking weed, etc.) That being said, my tinnitus is still exactly the same as it was the first day I noticed it, and I still find it hard to accept it and not be periodically irritated/depressed by it, but there's pretty much nothing I can do. *sigh*

four Marxes plus four Obamas plus four Bin Ladens (Shakey Mo Collier), Thursday, 9 May 2013 23:32 (five years ago) Permalink

sleep is an awesome improvement though, am so glad you finally cracked that

set the controls for the heart of the sun (VegemiteGrrl), Thursday, 9 May 2013 23:33 (five years ago) Permalink

It's great to have you back!

schwantz, Thursday, 9 May 2013 23:37 (five years ago) Permalink

congratulations, shakey!

polyphonic, Thursday, 9 May 2013 23:39 (five years ago) Permalink

Are you using Remeron to get 8 hours? That is a fantasy amount for me.

I will forlornly return to my home planet soon (dandydonweiner), Thursday, 9 May 2013 23:44 (five years ago) Permalink

i'm glad you're feeling at least a bit back to normal! keep on keepin' on!

i guess i'd just rather listen to canned heat? (ian), Thursday, 9 May 2013 23:46 (five years ago) Permalink

yes I'm on 15mg remeron. I take it at night... it's not like ambien where you are like *wham* asleep 15 minutes later but I don't have the panic/anxiety symptoms that were waking me up and keeping me awake.

tinnitus itself is still annoying as fuck, feel like I have to constantly make an effort to think about something else.

xp

four Marxes plus four Obamas plus four Bin Ladens (Shakey Mo Collier), Thursday, 9 May 2013 23:48 (five years ago) Permalink

what are the side effects of Remeron?

I will forlornly return to my home planet soon (dandydonweiner), Thursday, 9 May 2013 23:54 (five years ago) Permalink

so I am now back to sleeping 8 hrs a night

! congratulations! I didn't get that back for four whole years.

not feeling those lighters (underrated aerosmith bootlegs I have owned), Friday, 10 May 2013 00:17 (five years ago) Permalink

Congrats on the sleep!

EZ Snappin, Friday, 10 May 2013 00:18 (five years ago) Permalink

Is the Ambien you sometimes use the 12.5mg CR version? It's a dual-layer pill, some kicks in immediately (or within 15-20 minutes), the rest 3-4 hours later to help prevent waking up in the middle of the nite. I've been using that for the last year (after 8 years of taking the standard 10mg version) and it helps immmensely, although I do need to switch to something else temporarily for a week or two every several months so the ambien starts working again.

and in his absence, she (Lee626), Friday, 10 May 2013 01:04 (five years ago) Permalink

what are the side effects of Remeron?

I am, fwiw, apparently very sensitive to a lot of medications' side effects and remeron has a very mild side effects profile. the most common side effects are an increase in appetite and cottonmouth (hmm this sounds familiar), neither of which have really bothered me.

four Marxes plus four Obamas plus four Bin Ladens (Shakey Mo Collier), Friday, 10 May 2013 15:41 (five years ago) Permalink

lol that does sound familiar

my wife's sleep issues are worse than mine, so I don't know if remeron's an option for her or not but thanks for the info

I will forlornly return to my home planet soon (dandydonweiner), Friday, 10 May 2013 19:21 (five years ago) Permalink

Congrats on your sleep, weed and music resumption! Funny, the other day a Ray Charles/Milt Jackson (sans horns) piece came on my iTunes and I thought, "Hm, wonder how Shakey's doing."

Tarfumes The Escape Goat, Friday, 10 May 2013 19:23 (five years ago) Permalink

three weeks pass...

I don't like how the daily grind of dealing with this occupies so much of my mental real estate. my life is back to normal for the most part but I still get distracted/depressed about it on the regular

Mr. Scarf Ace is Back (Shakey Mo Collier), Monday, 3 June 2013 15:40 (five years ago) Permalink

three months pass...

well it's been a year. my sleep is mostly back to normal (babby notwithstanding) I'm down to a quarter-tab of remeron a night and expect to phase that out over the next few weeks. so that's good. I can function and do stuff, for the most part. It still bugs me - I have a hard time concentrating in silent environments, or if there's like a silent scene in a movie or tv show for ex. I wear an earbud most of the time at work, which I guess isn't so bad. Chronic back pain persists for the most part, it comes and goes. Maybe a new bed will improve that, I dunno. I try not to complain about the tinnitus much cuz really what's the point, it is what it is and I just have to deal with it.

what's up ugly girls? (Shakey Mo Collier), Tuesday, 1 October 2013 23:07 (four years ago) Permalink

Congrats on making such huge strides over the past year. I know it isn't easy but it must be heartening to look at the low points and see them far in the rearview mirror.

EZ Snappin, Tuesday, 1 October 2013 23:59 (four years ago) Permalink

wtg shakey!

set the controls for the heart of the sun (VegemiteGrrl), Wednesday, 2 October 2013 01:37 (four years ago) Permalink

Great to hear, hope things continue to improve.

Plasmon, Wednesday, 2 October 2013 02:20 (four years ago) Permalink

eleven months pass...

Hi I mostly lurk but I have (currently) mild tinnitus so I think about Shakey sometimes. Anybody know how he's doing?

ugh (lukas), Tuesday, 16 September 2014 19:19 (four years ago) Permalink

He has a new source of misery, reading Tom Disch's The Dreams Our Stuff Is Made of.

Colossal Propellerhead (James Redd and the Blecchs), Tuesday, 16 September 2014 19:21 (four years ago) Permalink

Οὖτις ἐμοὶ γ' ὄνομα

Roberto Spiralli, Tuesday, 16 September 2014 19:22 (four years ago) Permalink

Ohh

ugh (lukas), Tuesday, 16 September 2014 19:34 (four years ago) Permalink

I am still alive. My tinnitus is the same. I don't take any drugs anymore (well, beyond weed + liqour), I sleep 6-7 hours a night (still getting woken up by a toddler at this point). My back pain comes and goes.

Οὖτις, Tuesday, 16 September 2014 19:55 (four years ago) Permalink

comin up on 2 years Oct 1

Οὖτις, Tuesday, 16 September 2014 19:55 (four years ago) Permalink

thx for asking btw

Οὖτις, Tuesday, 16 September 2014 19:55 (four years ago) Permalink

My wife's got worse this summer but her ENT is starting to think its TMJ. Which would be good news IMO bc there are things they can do about TMJ.

Mine is awful at this precise moment, coincidentally.

arthur treacher, or the fall of the british empire (Jon Lewis), Tuesday, 16 September 2014 21:12 (four years ago) Permalink


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