AGING PARENTS

Message Bookmarked
Bookmark Removed
Not all messages are displayed: show all messages (1690 of them)
My father's 77, suffers from dementia and psychoses due to alcoholism which the psychiatrists think was in part due to early onset alzheimers as well as his being extremely depressed. He's in a home, a wreck of a man and his family barely talk to him and none of his old friends come near thanks to the treatment he metted out to everyone. My mum watches out for him and takes care of him. It's quite horrible, he doesn't recognise me.
I'm just saying I hope you appreciate good people in ill health as well as good health. It's a massive burden and can be very upsetting. My eldest brother refuses to aknowledge my father's situation in anyway which is horribly awkward because he's the legal next of kin. (Which is another thing to be wary of when you have to take care of your parents, your status in law). Don't be ashamed to look for help if you can. But if you do make sure that they're treated well, homes and nurses aren't necessarily good, abuse of the elderly is more common than is often aknowledged and pretty horrible.
Anyways I hope all your parents always have plenty to smile about whatever their troubles.

Major Alfonso (Major Alfonso), Tuesday, 22 August 2006 00:14 (seventeen years ago) link

xpost --
I think about death a lot, but haphazardly -- impressionistically, I guess -- because I haven't had to face it up close. I don't really want to live as long as my grandmother. There was a big reunion of my father's clan a couple of years ago and just by chance, a couple of days earlier there had been a story about an 80-year-old guy who played golf with his buddies and had died of a heart attack right after finishing. I was telling one of my aunts about this, and how awesome it was. "That's how I want to go, 80 good years, then lay down for a nap and drift away." My aunt was a bit pissed off at this. "I'm 80 years old, do you think it's time for me to lay down and die?" Holy fuck, ultimate foot in mouth.

Danny Aioli (Rock Hardy), Tuesday, 22 August 2006 00:17 (seventeen years ago) link

Oops!

Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:19 (seventeen years ago) link

I blame my dad's wine.

Danny Aioli (Rock Hardy), Tuesday, 22 August 2006 00:25 (seventeen years ago) link

If wine was the key to longevity we'd be a family of the undead!
My parents used to get mailings from the Hemlock Society, but when it came right down to it, my father couldn't do it. He had Alzheimers, too, so if there was ever a case for offing yourself... I think in a case like that you just have to pick a day to do it and stick to your plan. My father was a terrible difficult person—I wrote upthread about the difficulty in believing that my mother's dotty behavior isn't deliberate—somehow manipulative. With my father it was the same, if not more so. Even though I knew his brain was being turned into a rotten hunk of plaque I still felt like the resulting behavior was just more of the same shit we'd been putting up with our whole lives.

The child unable to believe that the parent has lost power?

Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:31 (seventeen years ago) link

terribLY difficult. Sheesh!

Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:34 (seventeen years ago) link

haaa, no, I blame my dad's wine for being thoughtless enough to tell some old people I wanted to die when I got their age. (Which is not exactly what I was saying, but I'm sure it sounded like that.)

Danny Aioli (Rock Hardy), Tuesday, 22 August 2006 00:51 (seventeen years ago) link

Too bad you didn't say quickly enough, "Oh, I figure I'd have to live at least to 90 in order to get in that many good years!"

Aimless (Aimless), Tuesday, 22 August 2006 01:09 (seventeen years ago) link

Good one!

My mother (89) has had alzheimers for about 8 years. Her body has served her well, but her brain slowly went to bits shortly after my stepfather died. Unable to manage her house anymore, my brother and I moved her to an independent living center that guaranteed access to its nursing home if and when the time came. It came about two years after the move. I live 3 hours away, but my brother lives within walking distance and visits her several times a week and we included her in family events until about a year ago when she just became unable to feel comfortable outside of her nursing home environment.

She's now almost totally deaf and has never used a hearing aid which makes any serious communication impossible. I visited last week and found her doing a crossword puzzle. We did the puzzle together for a while, but her mind kept drifting all over the place.

My wife's father (82) has Parkinson's and fell down the stairs recently. Compression fractures of three vertebrae was the diagnosis. Surgeons injected some kind of cement in his spine and he was getting about with a walker after only a few days. My wife plans to care for him in his home in the near future. He suffers from dimentia, too, but is on so many meds that I think that may be a contributing factor. This guy was an infantryman in world war II, a radio and tv personality and has had a very good life. He is loved by many people and has had countless visitors at the hospital. He is very frail now and has told me, and I'm sure others, that he knows his life is at the very end.

These are two of the coolest people that I have ever known, both with precious little time left. One knows it and one doesn't seem to. They are both receiving the best care available, but y'know sometimes that don't mean a thing. My thoughts are with all of you.

jim wentworth (wench), Tuesday, 22 August 2006 01:27 (seventeen years ago) link

five years pass...

This. Heavy shit, huh?

(✿◠‿◠) (ENBB), Monday, 20 August 2012 17:34 (eleven years ago) link

yep

curmudgeon, Monday, 20 August 2012 18:31 (eleven years ago) link

In darker moments, I look at my folks now (esp. my Pa who is 75 this week) and feel like the wave of their good years is just on the cusp of breaking. Not really ready for it, not at all.

that mustardless plate (Bill A), Monday, 20 August 2012 18:44 (eleven years ago) link

My mothers good years are most definitely past. This has become very evident as she's staying with me for a couple days and it's totally heart breaking. Also, there's some memory loss/disorientation stuff happening that's scaring the crap out of me.

(✿◠‿◠) (ENBB), Monday, 20 August 2012 18:54 (eleven years ago) link

so heavy i can't really talk about it

these albatrosses have no fear of man (La Lechera), Monday, 20 August 2012 19:00 (eleven years ago) link

Yeah. I started trying to talk about it with someone at work and couldn't really hold myself together. This is really tough. :/

(✿◠‿◠) (ENBB), Monday, 20 August 2012 23:12 (eleven years ago) link

Good luck Erica... luckily my parents are still mostly 'together' and my dad's problems are a result of his alcoholism rather than real mental deterioration, but it's still awful to have to deal with this stuff.

one dis leads to another (ian), Monday, 20 August 2012 23:31 (eleven years ago) link

yeah i'm going through this too. all the best, E x

jed_, Monday, 20 August 2012 23:36 (eleven years ago) link

and everyone else :/

jed_, Monday, 20 August 2012 23:36 (eleven years ago) link

This took up took up over 10 years of my life (from 1994 - 2008 in fact). Both my parents got ill in their early to mid-seventies, and both had dementia and a pretty terrible end in a nursing home in their late seventies.

I spend most of this period visiting at weekends, and other times - and in that rather mad space where you seem cut off from the concerns of normal life, unable to relax for a minute, and living a kind of nightmare existence that no-one else around you realises. (Nothing like the horrific life of a full-time career - but bad enough).

The only thing you can say about it is that it passes, and you realise that what felt like an endless enduring period was in the end just another temporary era.

Bob Six, Monday, 20 August 2012 23:43 (eleven years ago) link

Siblings help -- if you're lucky.

a regina spektor is haunting europe (Alfred, Lord Sotosyn), Monday, 20 August 2012 23:46 (eleven years ago) link

I'm an only child. This is the only time I've ever wished I had siblings tbh.

Thanks, guys. Things are OK and we had a really nice evening. She's staying with me until she flys back to FL on Wed. Ian - alcoholism is a factor here too in addition to a lot of other things. I guess I just really feel for my dad and am really saddened by realizing that it's only going to get worse from here and I'm afraid it's going to do so pretty quickly.

(✿◠‿◠) (ENBB), Tuesday, 21 August 2012 00:10 (eleven years ago) link

I feel for you, ENBB. I'm an only child too; my mom's 84 this year but still drives, takes care of her own stuff, is still sharp as ever (dad died in 2000). But I dread so deeply the coming of the signs. I can't even model it in my mind. Hugs.

Lewis Apparition (Jon Lewis), Tuesday, 21 August 2012 00:37 (eleven years ago) link

my mom's 84 this year but still drives, takes care of her own stuff, is still sharp as ever

That's fantastic, good for her! Mine is 74 this year but she's an old 74 and hasn't driven in at least 5 years. Anyway, like I said, we had a lovely day today. It's just a really difficult process to watch and I worry about what will happen down the line.

(✿◠‿◠) (ENBB), Tuesday, 21 August 2012 00:53 (eleven years ago) link

pullin for you E - us only children gotta stick together. this terrifies me too - and is a big part of what motivates me to do what I do now - but hopefully there will be a good, long time before anything really happens.

jack chick-fil-A (dayo), Tuesday, 21 August 2012 00:58 (eleven years ago) link

You know you have my support as another only, but I'm too much of a weakling to talk about this stuff
In earnest
In public
Beyond this

But you know where to find me offboard if you wanna talk!!

these albatrosses have no fear of man (La Lechera), Tuesday, 21 August 2012 01:57 (eleven years ago) link

i will say that my mom is pretty damn sharp in mind, but whenever i visit, i insist on driving EVERYWHERE. her driving scares the bejesus out of me, don't understand how she hasn't had her license taken away. and it only gets worse as she gets older.

for reasons of sass (the table is the table), Tuesday, 21 August 2012 05:28 (eleven years ago) link

yeah driving is often the "tipping point" of aging parents decline. really hard to give up.

my heart goes out to enbb,la lechera, ian and everybody facing this. all my middle-aged friends have ailing/aging parents right now, you guys are confronting it early like i did. these days my father in law is essentially dying, i was going to post this on the fuck cancer thread but it fits here too. he's 84, until a couple years ago was robust mentally and physically, the picture of how you'd hope to age. so it's shocking to see his rapid decline not just bodily but he's become very confused and withdrawn, barely a shell of his former self. chemotherapy is keeping him alive but at what cost? we just had our annual visit and my wife, her mom (who's a rock) and her two siblings are stressed out and struggling. not much else to say. but it's good to talk about it, in fact it's important for your - our - own mental health to let it out.

(REAL NAME) (m coleman), Tuesday, 21 August 2012 09:39 (eleven years ago) link

My dad had the driving decision taken out of his hands as he went blind in one eye at the start of the year, but he was getting to be quite a dangerous driver before than (he's 80) so we're really quite glad about it.

ailsa, Tuesday, 21 August 2012 09:54 (eleven years ago) link

even though she knows she needs them, my mom refuses to get glasses because she thinks that they make her face look weird
she lives in fear of having her driver's license taken away from her because she is a very independent person and likes her alone time
:(

these albatrosses have no fear of man (La Lechera), Tuesday, 21 August 2012 13:24 (eleven years ago) link

My mother-in-law has had quite serious dementia for the past six years or so. This started when she was in her early-to-mid 60s - one of the first events that really got us thinking that something was up was when she drove her car the wrong way round a large roundabout into oncoming traffic. At the moment she lives in a nursing home as is pretty much just a shell of her former self - she doesn't even know who her children are any more when they come to visit, but thankfully she does still appreciate the company which at least is one small positive that you can take away. Totally depressing though, so for anyone out there who is dealing with this right now, I can totally sympathise.

mod night at the oasis (NickB), Tuesday, 21 August 2012 13:35 (eleven years ago) link

My mom, turning 80 next month, has been fighting the decline, bless her. Joined the hospital wellness center, has been selling and giving away decades' worth of my dad's accumulated packratcrap, still gets out there and mows her own lawn, etc. Next week she, my daughter and probably my wife are heading off to Biloxi to the casinos. But the decline is there...bad knees, bad feet, diabetes... My sympathies to everyone having a tough go of it these days.

Romney's Kitchen Nightmares (WmC), Tuesday, 21 August 2012 13:45 (eleven years ago) link

My mum (68) has been dealing with my gran (88) for a long time; my gran has alzheimers. About six months ago she finally got her moved to a nursing home in the same town (200 miles from where my gran was before). Only now is she at the point where she can see any humour in the situation, which results in Facebook messages like this from my mum:

Today's visit to your gran!

G. (after a bit of mumbling and searching for words) Are you my daughter?

Me. Yes.

Gr. Are you really my daughter?

Me. Yes.

Gr. I can't remember. Am I your mother?

Me. Yes.

Gr. Where did we live?

So I started giving her a potted history of our life.

GR. How do you know you're my daughter?

A bit later on....

Gr, Haven't I got nice legs!

She thought it was quite funny that she couldn't remember things; seemed very happy and settled. The staff bore this out.

Sick Mouthy (Scik Mouthy), Tuesday, 21 August 2012 14:11 (eleven years ago) link

three months pass...

My mom and grandma live together with mom's "girlfriend", and I moved to be closer to them and my terminally ill Dad (they were separated). Grandma is sharp as a tack and well into her 90s. Of course I love Grandma, but mom is making seeing Grandma a miserable experience.

Like I said elsewhere she is getting into that old people thing of being passive-aggressive. I know I called her a "fascist" I didn't mean it, it's that her emotional state is kind of fascist.

It's her stupid family. She wasn't raised by her own mother, she was raised by her abusive and creepy grandmother and aunt and it really shows in how she deals with stuff like death and adult responsibilities.

If anything difficult happens in her life - death or whatever - she just escapes mentally. Her mom's family had a lot of money and stuff was handled for her all her life!! She doesn't understand why other people don't have it as easy. Because of her family, she feels she has a lot of power and I can't ever suspect her of having mental problems EVER.

six months pass...

My mom gave up driving last month. Kinda shocked, but pleased that she came to the decision herself. She's 88 and is in reasonably good health for her age - despite the piles of crap that she's hoarded (ongoing issue for her entire life). Sister is gone for several weeks so I'm on mom duty... it's extra frustrating because her hearing is so bad that she leaves the televisions on with the sound maxed-out and she can't hear the phone.

Vexing problem of the moment... Her sense of time and calendar dates are slipping, so making plans becomes a comedy of errors ("stop by this week" *does so* "what are you doing here, I said to come by next week") ad infinitum ad nauseum

Elvis Telecom, Monday, 1 July 2013 23:40 (ten years ago) link

wow, that sounds like a serious challenge. i'm sorry. i have this thread bookmarked and it popped up just as my parents arrived yesterday for their first visit in 3 years. they are aging. my mom is in great shape (in spite of some health issues this year) but my dad keeps looking and acting less like himself, which is thrown into stark relief when we look at old pictures together.

hmph.

free your spirit pig (La Lechera), Tuesday, 2 July 2013 14:15 (ten years ago) link

I am going to visit my parents this weekend and I think that I'm actually going to have to ask them point blank what they want me to do for them if they ever get dementia or need care etc. My mom is in bad shape and her memory is already slipping and my biggest fear is that my dad dies first (though this is prob unlikely you never know) and I'm left to make decisions for/about her. I want to know now and while I know she's not going to want to talk about this I'm going to make them because I'm an only child and they have no other relatives here to help and I can't handle the stress and weight of this alone without knowing what they want.

Airwrecka Bliptrap Blapmantis (ENBB), Tuesday, 2 July 2013 14:19 (ten years ago) link

Just to share my own personal woes on this thread --

My father nearly died last week; he collapsed on his way to the bathroom in the middle of the night. The ambulance came and got him to a hospital and it turned out he had two massive ulcers in his stomach and large intestine. This comes about 6 weeks after a surgery to biopsy a growth in his spinal cord.

Yesterday morning, recovering from the emergency surgery to stitch up the ulcers, he had a major heart attack and is in the hospital with a breathing tube, heavily sedated etc. On our way up to Rhode Island yesterday our van broke down on the Triboro Bridge -- shocks gave out and started to rub against the front tires, causing lots of burnt rubber smoke. We got it towed back to your neighborhood (luckily we weren't halfway through connecticut) and it's going to be repaired this afternoon, $800 later. I'm incredibly worried about my dad. The doctors are not sure how to treat him; they can't give him the usual blood thinners and medications because of the ulcers and recent surgery. I wish so badly I was there. And now I'm worried about the drive up, even though the car is getting fixed, I have a strong distrust of automobiles... Just don't know what to do. It's bad when my aunt is telling me to go straight to the hospital and bring his 'paperwork' (read: living will.)

So scared :\

i guess i'd just rather listen to canned heat? (ian), Tuesday, 2 July 2013 17:06 (ten years ago) link

I'm sorry to hear all of that.

Tottenham Heelspur (in orbit), Tuesday, 2 July 2013 17:37 (ten years ago) link

me too. suerte, ian.

free your spirit pig (La Lechera), Tuesday, 2 July 2013 18:41 (ten years ago) link

Oh, Ian. I'm sorry.

Airwrecka Bliptrap Blapmantis (ENBB), Tuesday, 2 July 2013 18:51 (ten years ago) link

Aw man... Hoping for the best

Elvis Telecom, Tuesday, 2 July 2013 23:26 (ten years ago) link

the latest news is that he's off the respirator and able to talk a bit, though he is very disoriented and doesn't know where he is... so that's great news. the doctor was surprised at how much he's improved since last night when things were a bit more up in the air.

our car didn't get repaired until after 5:30, and not wanting to drive in rush hour, we are going up tomorrow morning.. thanks everyone for your kindness.

i guess i'd just rather listen to canned heat? (ian), Tuesday, 2 July 2013 23:34 (ten years ago) link

Safe travel, sweetie.

Tottenham Heelspur (in orbit), Wednesday, 3 July 2013 03:53 (ten years ago) link

Urgh ENBB, reading your posts here and on other threads - I have the feeling that we're on the same boat.
I'm an only child, living 4 hours away from my parents, with my father at a very advanced stage of Parkinson's and my mother seriously diminished by years of alcoholism (with late-blooming epilepsy added to the mix). My dad has been the justification for getting home-help but in my mind the caretaker's role is also to watch over my mom and alert me when things get real bad. I've been freaking out for the last two years at what will happen if/when my dad passes away and I cannot justify to my mom keeping a caretaker at home.

that rather mad space where you seem cut off from the concerns of normal life, unable to relax for a minute, and living a kind of nightmare existence that no-one else around you realises.

Nailed it. The last two-three years of my life have been a long panic attack basically, always concerned what may be happening at my parent's house at any given minute, always refusing to relax or to go on trips because I always feel like i'm on standby mode and might need to rush to my parent's home at any time.

licorice oratorio (baaderonixx), Wednesday, 3 July 2013 07:54 (ten years ago) link

There is a fine line between being a responsible child of an aging parent and being a child who feels responsible for his aging parents in the same way a parent is responsible for their child. If you feel like a disaster of some sort is perpetually imminent in your parents' lives, then they need both more and less from you than your being on perpetual panicky standby.

Hovering nearby in anxiety just exhausts you and accomplishes very little. They need your assistance to form a plan to get more help in their daily lives. If they refuse this assistance, either you must honor that refusal and trust them to steer themselves, or if they have become legally incompetant to be responsible for themselves, then you must bite the bullet and seek the authority of a conservator or guardian, so at least you can move them away from the brink or perpetual disaster.

I know this x1000 times easier to say than to do. I just would like to plant the seed of this thought so you can consider it.

Aimless, Wednesday, 3 July 2013 18:14 (ten years ago) link

Yeah you're totally right. Knowing deep down that this endless anxiety has zero value to them is one of the most frustrating parts. I basically feel I'm on the border between the two scenarios you describe - ie. my mother is too lucid/young/healthy to be completely assisted or put in a home or under my legal guard - and yet alcoholism makes her accident prone and unable to care for my dad and her household. They've got several hours of help every day but even that is starting to seem not enough.
I know that I should stop aimlessly panicking and start making concrete plans but my general response to the anxiety is to try as hard as I can to put in my head in the sand and try no to think about it. So yeah, obviously not a winning strategy

licorice oratorio (baaderonixx), Wednesday, 3 July 2013 19:05 (ten years ago) link

Alcoholism really complicates that picture. You have a damned tough row to hoe. But you can't realistically save people from themselves.

Aimless, Wednesday, 3 July 2013 19:09 (ten years ago) link

baaderonixx - Yeah, it does sound similar although thankfully my dad is still in pretty good health but you never know and that's what scares me. I've tried to talk to them about it before but my mom flat out refuses to do so because she likes to ignore her mortality but that's just fucking selfish and I'm sick of worrying about this so I'm going to bring it up when I'm down there next weekend. He is her caretaker right now and I just have no idea what I'd do if something happened to him. I'm sure as hell not moving to Florida that's for sure.

"The last two-three years of my life have been a long panic attack basically, always concerned what may be happening at my parent's house at any given minute, always refusing to relax or to go on trips because I always feel like i'm on standby mode and might need to rush to my parent's home at any time."

If my dad weren't around and in good shape I'm sure this would be me too. That said, if my phone ever rings and I see it's them calling at a time I'm not expecting I go into extreme panic mode. Also, Christmas this year was so awful that I wound up extending my visit to go with my mom to the dr to see about her meds/drinking but sadly, it didn't really do much. At least I felt better for trying.

Oh baad, I'm sorry you're dealing with this. It's really stressful and yours sounds like a particularly tough situation right now.

Airwrecka Bliptrap Blapmantis (ENBB), Thursday, 4 July 2013 02:00 (ten years ago) link

geez ian, hang in there man.

call all destroyer, Thursday, 4 July 2013 02:02 (ten years ago) link

five months pass...

I'm spending my Christmas break cleaning out my mother's hoarder house. She's 89 and after being very active for most of her life, her body has quit out on her and she's depressed, but meeting it with competing levels of rage and denial. She's flat-out refused all help for years and can be quite alienating about it. Her balance is very unsteady, but she can't use a walker in the house because there's too much trash. My sister brings her food, but she won't let anyone in the house. Hoarding has been an issue in her entire life - it's the reason why my parents broke up. When given the choice between her house full of newspapers and unopened mail or her family, she chose the pile. Now there are consequences.

Ten days ago she began (lust like the commercial) falling down and not getting up. She knows she can't call 911 because emergency services will report just how much of a fire hazard things are in there. Each fall has been progressively worse... The next day, my sister found her fallen over on a pile of unopened magazine. Apparently she had been there overnight without any clothes on and had, well, vacated herself on top of things. The day after that, she fell again and became hypothermic. So after a stay in the hospital and time away from the horrifying conditions in her house she's in outpatient assisted living and impatiently wanting to go home. Only she can't, because it's a shambles. About the only plus side to having to having to Make A Decision about assisted living/nursing homes during Christmas break is that there are so many of them in Orange County.

So we're finally cleaning the house. Desperately want to rant about the weird shit I'm finding, but I don't anything ending up on Reddit right now. The photos I took of the "high water mark" before we began emptying things out have been powerfully radioactive. I think my aunt had a nervous breakdown and I haven't heard back from the last person I sent them too.

his Christmas I've broken out of my current state of "existential depression fortified by all-new economic anxiety" has been interrupted by

Elvis Telecom, Tuesday, 24 December 2013 05:23 (ten years ago) link

plz don't lump ilxor Jaq in with the death racketeers. some of the people drawn into that field see it as a calling and are truly wonderful. in sum, death is a land of contrasts.

more difficult than I look (Aimless), Saturday, 4 November 2023 04:01 (five months ago) link

Would never, Jaq is amazing!

real warm grandpa (Neanderthal), Saturday, 4 November 2023 04:40 (five months ago) link

Aww y'all are very sweet. That's a terrible spot the church has put you in Neando - I really hope the celebration of your Dad's life is memorable for good reasons.

Jaq, Saturday, 4 November 2023 12:22 (five months ago) link

three weeks pass...

Mom had an ER visit this weekend, though fortunately relatively minor - turned out to be a minor bout of colitis and she got sent home after an IV drip with antibiotics.

we chose a different one than the one dad usually stayed at because didn't wanna dredge up those memories.

she also has a cough that she's seemed to have for a month and a half that I'm concerned about, esp given lung cancer history (though she never had a cough when she DID have the lung cancer before it was removed). asking her to get that looked at next. hospital didn't really do anything w/ that since it wasn't her primary reason for visit.

a very very unfair (Neanderthal), Monday, 27 November 2023 15:38 (four months ago) link

Mom borrowed $150 from me a week and a half ago and is extremely vague about when she can pay back. I really wasn't in any place to do it. But I can survive that once.

So she hasn't paid that back and asks for $350 today and I (unintentionally) reacted exasperated "no way - I don't have that to spare right now".

Like if I do that, nobody's getting a Christmas gift this year.

Why don't I say no more often?

Half the time she goes to my brother who immediately msgs me to complain.

Or she goes and gets a predatory loan from somewhere without telling me.

20+ years of this shit, going back to age 18.

At least this time I finally reacted the right way. But she knows I can't afford to do this and saw the distraught way I looked on Friday before I broke down crying in my car and my best friend called me trying to comfort me.

Why would you ask when you know I can't and when you know it's going to get me worked up? It's the feeling of being asked to solve everyone's problems that stresses me out more than anything.

On the plus side, I think I staved off the lawsuit by settling with my bank. If you can call it that.

a very very unfair (Neanderthal), Tuesday, 5 December 2023 03:40 (four months ago) link

Like at what point do I just leave the country and go into hiding so I can start over anew under a new identity and everyone else cash my life insurance cos that's all I am apparently anyway atm, a bank

a very very unfair (Neanderthal), Tuesday, 5 December 2023 04:13 (four months ago) link

It’s ok if no one gets a Xmas gift. Felt like I needed to say that.
I feel like saying no and maintaining your boundaries is a muscle that needs to be flexed in order to grow strong enough to work.

Piggy Lepton (La Lechera), Tuesday, 5 December 2023 14:51 (four months ago) link

it is for sure. I appreciate the response.

It was a wee bit easier for me to enforce my boundaries when my mother wasn't my roommate. then, I actually told them a few times I would not help but actually told them how these actions were hurting me. they would always find a solution when I said "no" (usually someone else that wouldn't tell them "no"), even filed bankruptcy twice in the shortest window of time allowable by law.

The moment I agreed to move in with the folks to help with rent and take care of dad, that hurt that dynamic a little. I'm aware that this is still an excuse and not one that absolves me, but - my ability to stay detached and not get directly involved in my mother's financial issues became a lot more difficult when they could potentially threaten her ability to pay rent. I absolutely can't afford to pay the entire rent myself - and I'm stuck in this lease until October of 2024. (after which I am 100% moving out, it's already been discussed - mom needs to find a rental assistance property as she will likely qualify)

as far as the presents thing, it might sound silly and materialistic, but...I went to Sea World with friends a few weeks ago and they were playing nothing but old school Christmas music and I just got really down and sad. it reminded me of dad, but all I could think as well is how great our family Christmases were growing up and how lousy this year's is going to be, not just because of dad, but because of how much I'm struggling just to keep the lights on.

at least being able to treat my friends and family, even if on a diminished scale...would at least help me salvage the holiday, make it feel real. I'm not a religious person or even someone who was mega into Christmas, but our family Christmases brought a lot of wonderful memories - even recently, in 2021, dad got sprung from assisted living on Christmas Eve, returned home, and promptly began actually singing (sotto voce) Beatles songs along with my brother, which he'd not done in a long time.

in any case, so my brother apparently made a secret deal with mom that he's going to give her a little bit of money each week until her job starts (and she's already passed orientation and is ready to start ASAP). I'm not contributing anything. I'm going to let my brother do this because frankly, I've done way more of the financial lifting than him, and he isn't in danger of going ass-up at the moment, from what he told me.

also Social Security is fucking Mom over their seeming confusion of how Waivers of Overpayments work - their own form says not to use it if it's for a waiver of under $1,000, and every time she calls, they refer her to use the form, even when she points out the form says not for under $1,000. One of the times when I was with her, they told her they were taking care of it, only to send a letter showing us they actually did nothing whatsoever. so now we're sending in a form and going to snarkily circle the part that says not to use for under $1,000, but if anybody knows of any way to escalate a complaint to SS sooner, please let me know.

a very very unfair (Neanderthal), Tuesday, 5 December 2023 22:05 (four months ago) link

three weeks pass...

I was worried about how Christmas would go this year. we decided to celebrate at an affordable hotel that my brother and I paid for, because Mom just thinks of Dad all the time she is home and wanted a change of scenery, and we thought this was a great idea. Although we're all grieving, Mom is (understandably) having the hardest time with it. She was married to him for 50 years, and we never had a hospital bed for him - even in his last months living at home, they slept in the same bed.

Mom and I had not been getting along as well recently, which for us is unusual - for years we had gotten along wonderfully, one or two caregiver burnout squabbles excepted. Part of it due to her putting her energy 100% into me now, and me feeling suffocated at times, whereas me not having fully processed my grief also has lead me to act out in ways unlike me. I even apologized a few weeks ago for my mood...it just comes out of nowhere.

Well, this Christmas was nothing short of wonderful. We spent a lovely time together, me, my mother, my brother, and his fiancee. My brother's fiancee was with us as Dad died and is just as much family as any one of us three, and has been a huge help to my mother (she lost her own father in a tragic accident a few years ago). Mom did have a moment that broke my heart a little - we left dinner to go back to our hotel and I asked (foolishly) "Are you having a good Christmas?", and her demeanor changed and she said "as good as ...can be expected", and started crying, so I hugged her hard for a moment and told her I loved her.

My brother...for all the complaints upthread, did one of the most thoughtful things he's ever done, and as a gift got me custom guitar picks...with pictures of me and Dad on them (as well as one of the four of us on the back).

Over the few days, I had moments where I kept thinking of Dad. I finally had a moment alone after mom went to sleep, and I pulled up dad's FB profile (which now is a Memorial page), and thumbed through pics for the first time in some time, I finally let the grief wash over me instead of hiding from it, and just cried for about a solid half hour. there's still a lot of it left in me because my brain tries to shut down these crying fits but I didn't let it this time. I'm glad I did. it helped me understand how much I'd been holding back but also means I'm not just holding onto these feelings.

we're visiting my aunt this weekend for New Year's and going to finally spread some of his ashes around on his sister's property. that'll be a nice moment. we're healing, it's happening, but we've survived the first two holidays without him closer together, which was the end goal.

Ghidorah, the three-headed Explorah (Neanderthal), Tuesday, 26 December 2023 19:38 (three months ago) link

That's really good to hear. Glad you all were able to be together, and that you're able to let yourself feel your grief.

immodesty blaise (jimbeaux), Tuesday, 26 December 2023 19:40 (three months ago) link

My dear Dad passed away peacefully in hospital on Hogmanay. He had only been given a few days left about a week earlier.

We never told him he wasn't going to make it, so he was never frightened. I felt it was for the best. He wasn't in pain nor did he suffer.

He managed to say a few words to my mum on video call the night before and his last word was my name. I reassured him he would be home soon feeling better. He fell asleep.

He passed away 4 hours after I left (i spent the nights there as he was always afraid of sleeping alone in the living room on his hospital bed, so I always slept on the floor for most of the past 2 years.)

The nurse looking after him was there when he passed. This nurse had looked after Dad years ago and only lives 5 mins walk away from our home.

Toshirō Nofune (The Seventh ILXorai), Tuesday, 2 January 2024 16:59 (three months ago) link

saw your post on FB - very sorry to hear about your Dad :(. I know he'd been through a lot in recent years and that you'd been taking care of him. I think your strategy was absolutely for the best, and glad to hear he wasn't in pain.

Sending love and strength to you and your family - I know it's a tough time, but hopefully you're able to cherish the fond memories together.

<3

Disco Biollante (Neanderthal), Tuesday, 2 January 2024 17:09 (three months ago) link

all of that love and care you showed, it really sounds like it made a big difference in making things easier for him. my condolences to you and your family.

z_tbd, Tuesday, 2 January 2024 17:20 (three months ago) link

one month passes...

Daddy's birthday is in two days. we're going to have to cancel our plans to have dinner at the same restaurant we took him to two years ago, but it's ok - we can postpone and can do later, and her and I will be together on the day.

we're all getting more emotional again as the day comes. last year, he spent his birthday with us at home, and we took him to one of his fav Italian restaurants.

the other day I was trying to look up mom's medical records at AdventHealth, looking for bloodwork, and I pulled it up, but it was dad's account, registered under her name. i saw his last order releasing him to hospice, but the thing I wasn't ready for was the profile pic.

Advent started taking pics of the patients upon admission, which they never previously did, for the in-room tablet. so in the account was his frail face with the tubes under his nose.

that's not how I remember you Dad. I'll always remember your face being full of life even as shit collapsed all around you. thank you for everything. i'll always be your boy

CEO Greedwagon (Neanderthal), Friday, 16 February 2024 23:34 (two months ago) link

Mom seriously fucked me over and i'm livid. I know she didn't do it on purpose but i'm still upset.

bottom line on top, I can claim her as a dependent for last year, which I only discovered last September. I told her I was going to do this 5 or 6 times. she was fine with it (especially since I loan her money on occasion, so this would put me in a better position to do so). Because I waited so long to do it, I was still going to get approximately a $550 refund this year. Mom is getting no refund, owes no taxes, and isn't even legally required to file due to low income.

however, she has been convinced all year that she has to. I've clarified her 5 to 6 times she does not have to and even showed her the IRS regulations on this. Every time, she believes me for a little while, then two weeks later convince herself she has to file again, just because she got tax forms in the mail, so we have the conversation again. I also told her point blank - if you file jointly w/ dad for last year, and you're not claiming a refund, I *can't* claim you - so don't do it as it will cost me a lot of money!

The only thing we were unclear about is that PPL fucked up her caretaker payment tax form, not properly labeling the payments as Difficulty of Care. You can recharacterize these monies on the tax form itself, but since mom wasn't required to file, I wasn't sure if she actually had to do this or not, and whether it'd impact my ability to claim her. Mom said she'd go on her Turbotax and ask them in the help chat, so I wrote out the question for her in detail.

She not only never asked it, but she also secretly filed her taxes and didn't mention it to me at all. as a result, I went to file mine, and it was rejected, telling me she was already claimed. now I go from $550 refund to owing almost $1000, unless she files an amended return, and I file mine by paper. meaning a 2+ month delay, AND the possibility I don't get the money at all, and having no idea until they decide whether I'm getting $550 or owing close to $1000.

I'm trying not to be mad because I know she didn't do it on purpose but it's the principle of not listening to me when I said not to do this thing that would harm me financially and her doing it anyway. and then acting the aggrieved one when I got upset when I found out tonight.

CEO Greedwagon (Neanderthal), Tuesday, 27 February 2024 02:07 (one month ago) link

oh it's actually even dumber now, she is apparently getting a $5 refund (no idea how), but she deliberately left the box indicating she could be claimed as a dependent unchecked. which makes even less sense because we talked about that at length.

when I talked to her about it she immediately apologized in a way that was meant to make me feel sorry for her, how she's going through a lot, and I asked "am I not allowed to be upset?", like...why is it that anytime I'm rightfully upset about something it gets turned around on me?

going for a drive.....fuck this

CEO Greedwagon (Neanderthal), Tuesday, 27 February 2024 02:17 (one month ago) link

two weeks pass...

Hoo boy, trying to get my parents moved about 900 miles to be close to me. It took me and my siblings a few months of effort to persuade them that they need to move now to be close to one of us, because they are developing and will continue to develop needs that will make it hard for them to stay where they are — in a semi-rural setting with all of us hours (and in my case several states) away. For assorted reasons it makes most sense for them to move to where I am rather than where my siblings are. So my 79-yr-old dad has been packing boxes maniacally for a few months now and the strain of it all is overwhelming both of them. My job is to find the moving company and set all that up; find them a rental house to move into in the short term until they can sell their current house and then buy one down here; find them a doctor and start working on getting them a Medicare plan here; and then probably make multiple trips up and back to supervise the move and drive both of their cars down here. And all of that is supposed to happen by like June.

If we all survive, they should end up in a better situation. But whooee the next few months are gonna be fun.

congrats on getting them to listen/agree to move. i failed at that w my mom because she is the most stubborn person ever born and i am but one human being she doesn't actually want to be closer to.

Piggy Lepton (La Lechera), Thursday, 14 March 2024 15:05 (one month ago) link

lol I thought my dad was the most stubborn person ever born, but I guess he's second-most.

We moved more local a few years back for my in-laws as this thing does as time does. 3 years in and we (me and my wife) are intensely frustrated. All the passive aggressive "be near" has been for nothing, her (divorced parents) dad has basically decided to be resistant to any action to help him keep living. He is a Viet Vet, now blind and continues to insist living in a tiny old house with minimal support.

We are at the point that we have done what we did and live with it. Everything could be a lot worse but we gave up a lot that worked for us to try and help with them (very much my wife's ethos than mine). It is going to keep hurting for a good few more years and that is before we have to try and sort their shit out.

horizontal, Friday, 15 March 2024 04:46 (one month ago) link

"If we all survive, they should end up in a better situation. But whooee the next few months are gonna be fun."

try and take care of yourself. its a very stressful process. drink lots of water? wait, i meant whisky...

anyway, do what you can to not go bonkers with it all. one step at a time.

scott seward, Friday, 15 March 2024 04:54 (one month ago) link

i'm terrible at advice.

and i am lucky enough to be blessed with a spouse who will take my father to appointments while i work. and get his banking in order. and help with the bulk of the house selling and insurance stuff. wait, what do i do again? i must do something.

scott seward, Friday, 15 March 2024 04:56 (one month ago) link

has this ever happened to you guys? you try and build a business for 15 years and work a ton and cook meals for 4 people for almost 20 years and then your two kids finally go off to school and you want to relax a little and then there is a pandemic and your mom dies and your dad looks like death so he moves in with you and then your 80-something year old aunt who you never talk to and who is the most prickly pear you will ever meet decides that SHE is going to move to your town as well because she's lonely by herself - she was near my dad before he moved in with us - and gets an apartment and is coming here in april and when the inevitable happens and my dad goes - though lord knows he might outlive me - maria and i will be her only family as far as the eye can see and will no doubt have to deal with HER long into our dotage because she is way too prickly to die.

we actually think about moving and not telling anyone. my dad will just look up from his Wall Street Journal or his CJ Box book or his episode of Blue Bloods and wonder where we went to and he will have to walk to Walgreens for all his meals. he'd manage...

scott seward, Friday, 15 March 2024 05:02 (one month ago) link

just a little venting...nothing to see here.

scott seward, Friday, 15 March 2024 05:03 (one month ago) link

its always nice to beth parker's name at the top of this thread. she just e-mailed me last week to rant about science fiction podcasts.

scott seward, Friday, 15 March 2024 05:07 (one month ago) link

Yeah - I feel that vibe Scott (that is awful and I am sorry for you). Except we just gave up a ton of shit we liked to walk into whatever that turns out to be.

I need to meditate more.

There is that running point in the US that the generation of mass growth, success, glory and everything is also happily choosing to hand its care to their kids in a wonderful "plop" basket. Cos why wouldn't you?

horizontal, Friday, 15 March 2024 05:15 (one month ago) link

Tell Beth hi from us.

Ned Raggett, Friday, 15 March 2024 05:42 (one month ago) link

Scott I hope it works better than you're fearing, it sounds like you are a generous and loyal person who feels for his family, and ultimately that makes a better life than an asshole who's able to cut people off. But it comes at a cost.

assert (matttkkkk), Friday, 15 March 2024 06:19 (one month ago) link

I feel these posts. My siblings and I talked and none of us wanted to move, we all like where we are (and much love to Rochester, but if I wanted to live there I wouldn’t have left). Having my folks here does still restrict us, in the sense that my wife and I were tentatively talking about moving elsewhere in a few years and now obviously that is on hold. But we do love our current home and community, so staying longer is ok.

As I grapple with these move logistics part of me is like, we shoulda just let them stay where they are. But I know that’s not good either.

best wishes to yall and yr families <3

brimstead, Friday, 15 March 2024 14:30 (one month ago) link

three weeks pass...

My uncle died the night before last. Throat cancer got too hard to endure and he applied for MAID and went through with it. He was 70. He didn’t tell my mom he was sick, she just got the news after he’d passed. No funeral or service or anything.

Felt a little vindictive, but he was always the odd uncle. He wasn’t close to my mom or her other brothers. I always liked him, he was the arrested development uncle, shared his comics with me when I was 8, got me interested in Talking Heads when I was 10.

My mom isn’t showing any signs of grief, she never really got on with him. She was more piqueish herself about my health over the phone. “Smoking is how you get throat cancer.” I know, mom, I know.

Still, I’m like “wow I’m halfway between age 20 and dead at age 70.” My mom and stepfather are getting pretty old. By default I assume I’m the one who will need to live with them when they need it, I’m the gay one, my brothers all have wives and families.

I’ve had a tentative plan to move out west to be closer to my brothers and my mom, the plan is now less-tentative. I think I’m gonna be a good care-child? I’d like to be. Anyway. Sad to lose an uncle. First of my mom’s generation to go.

Premises, Premises (flamboyant goon tie included), Saturday, 6 April 2024 14:55 (two weeks ago) link

Sorry to hear that indeed -- and I get this sense of planning and wondering, though it's at best very vague for me still. One of my mom's siblings died of a heart attack some years back, nobody was close to him -- a classic fuckup, being blunt, but I hope wherever he was at gave him some peace. The real loss was my dad's younger brother and only sibling out of nowhere in 2015; the fact that it's almost been a decade now and my dad's the only one of his core family left is very strange to think about.

Ned Raggett, Saturday, 6 April 2024 15:38 (two weeks ago) link

I think I’m gonna be a good care-child?

This is something I've resolved too, even tho it wasn't a role I ever particularly planned on. Not that there were really any plans, which maybe would have been good if there were, but you can't force these things. Until about 6 months ago I think my dad's plan was "We stay where we are until we die." But subsequent events persuaded him otherwise, and now we have actual moving dates on the calendar. I don't have any exact expectations of what it will be like to suddenly live near my nearly-80-year-old parents after 30-plus years of NOT living near them, but I've just kind of decided I'm willing to do whatever that is.

Sorry about your uncle. My dad's brother died a few years ago, the first one of that generation for either of my parents (they both have/had two siblings). He was the youngest of my aunts/uncles but also the unhealthiest for decades (chronically overweight, smoker, addiction issues, COPD). My parents and the rest of their siblings all seem poised at the moment to make it into their 80s, but obviously anything can happen at this point. I've become accustomed to reading lots of obituaries of people famous and otherwise who died younger than my parents are already. On one hand it can seem a little crazy to be going to so much effort and expense to get my folks moved because we all know that at a likely maximum we're looking at 10 years at the outside. If they both keeled over tomorrow, I think they'd be as relieved as anything at not having to deal with continuing to get older. But as long as they're here, we'll do what we need to.

Big love to you both

Also going to see my dad next weekend, he’s been end-of-lifing for five years now, I feel oddly like this will be my last visit. Goddammit!! Navigating age is a psychological part-time job

Premises, Premises (flamboyant goon tie included), Saturday, 6 April 2024 16:04 (two weeks ago) link

Good luck, hope it's good time.

assert (matttkkkk), Saturday, 6 April 2024 23:32 (two weeks ago) link

Dad has made it to 97, but he’s now in hospital receiving end of life care and probably won’t make it to the end of the week. When someone you love reaches such an advanced age it feels almost greedy or selfish to wish for more - but however old, it never seems enough once the end of the road is in sight.

Ward Fowler, Tuesday, 9 April 2024 12:35 (two weeks ago) link

I'm so sorry to hear this.

Toshirō Nofune (The Seventh ILXorai), Tuesday, 9 April 2024 12:39 (two weeks ago) link

97 years, that is really something to celebrate <3

H.P, Tuesday, 9 April 2024 12:43 (two weeks ago) link

Wow @ 97. I'm sorry he is reaching the end, best thoughts to your family. That's sort of inconceivable to me. My mom is 77, it's hard for me to imagine another 10 years much less 20.


You must be logged in to post. Please either login here, or if you are not registered, you may register here.