― Beth Parker (Beth Parker), Monday, 21 August 2006 17:44 (eleven years ago) Permalink
It's a ways yet for me -- my folks are in their sixties and in good health still. But my dad is starting to slow down a touch -- kinda good that he's retired, officially -- and more than once I've wondered a bit about what the not-so-far-away-now future will mean.
Certainly I salute your patience with this all -- I'm not sure how I would react.
― Ned Raggett (Ned), Monday, 21 August 2006 17:52 (eleven years ago) Permalink
― Beth Parker (Beth Parker), Monday, 21 August 2006 17:56 (eleven years ago) Permalink
The patience is key, but it's really hard to keep it up. Can other siblings/capable family members come to visit to spell you for a bit?
― patita (patita), Monday, 21 August 2006 18:43 (eleven years ago) Permalink
If by 'graying', you mean 'balding', then yes, to some extent I am such a one.
At the moment the brunt of the responsibility has fallen to an older sister who lives much closer to my 81 year old mother than myself or my other siblings. She takes on the 'dutiful child' role, while the rest of us come in and put in a burst of assistance whenever the tide of troubles rises above a certain level, so my sister doesn't burn out.
My father died two years ago. During his last year and during the year immediately following his death, I drove the 75 mile round trip to see the two of them (later, just my mother) very often. There was so much that needed tending to.
My father, too, suffered from severe short term memory loss toward the end of his life, reducing him to a small shadow of the man he had been - because he became literally unable to encompass any activity that could not be completed within the two minutes or so that he was able to form and hold a single thought. He, too, was inclined to minimize or dismiss the severity of his problems. I finally realized that he understood very well the extent of his diminished capacity, but facing it was too great a threat to his sense of worth and happiness. Denial was how he held depression at bay.
Now that he has passed on, my mother has grasped the nettle of losing her companion and mainstay of 57 years with surprising firmness. I spent 8 months visiting her almost weekly during that transition. It helped a lot, I think, to have family members to talk to and grieve with, and help her form plans and carry them out.
I wish both you and your mother the best, but, as you no doubt know in your bones, even the best possible outcomes available to you and her are still damned difficult to embrace. The cost of love can be pretty steep sometimes, and the bills fall due with increasing frequency at this time. Good luck.
― Aimless (Aimless), Monday, 21 August 2006 19:10 (eleven years ago) Permalink
I just moved all of my (paternal) grandfather's stuff in with his, uh, 'friend' because he couldn't afford his truck payment and townhome rent and medicines and everything else at once. And since he's still part of the family cosntruction business I spend much of my day ensuring that he isn't overworking (or just screwing things up - he gets frustrated easily that his muscles and joints don't work like they used to).
My grandmother (maternal) has Alzheimer's (early-mid stage), and drove me kind of nuts before it was full-blown. Neither of my uncles, none of my ten cousins and my brother don't do shit. Anything not handled by my parents falls directly to me. The extent of the agonies here (some her fault, some not, mostly involving my useless uncles and their brood) is too long to list.
With both I'm always on-call to fix something or help out or figure out why the TV isn't working or why this bill didn't get paid. I can't say no, even when I want to, and the occasional feeling of being put-upon hasn't helped my relationship with my grandmother. (And, theoretically, I'd like to move north when my finances are sorted and my degree is finished - but I can't knowing that I'd leave anyone in the lurch.)
Only 20 years 'til my parents are in their late-70s...
― milo z (mlp), Monday, 21 August 2006 19:22 (eleven years ago) Permalink
― i'll mitya halfway (mitya), Monday, 21 August 2006 20:17 (eleven years ago) Permalink
It's a tricky situation as for whatever reason, mostly a weird sort of shame or embarassment, she is loathe to talk about her problems with my Dad or myself, or anyone really, my sister whom she is very close to can sometimes get a little discussion about it.
It's terrible because she grieves for her feet as things worsen, quite slowly, though the condition may one day lead to her being in a wheelchair. She grieves yet she never seems to get past the denial stage, she can't accept or discuss the problem.
So she will often cry kind of uncontrollably, it's awful to hear, but worse is that she won't allow you to help or even talk, my Dad sometimes just says to me "I have no idea what to do", which is also quite weird, it all feels kind of dysfunctional.
So I relate to the "denial" thing you mention Beth, my mother is much younger and this is a problem. I can only imagine what she'd think if she knew I was discussing this on a messageboard...I just wish I had some productive advice rather than just empathy...
― Ronan (Ronan), Monday, 21 August 2006 20:31 (eleven years ago) Permalink
― Beth Parker (Beth Parker), Monday, 21 August 2006 23:43 (eleven years ago) Permalink
Good luck Beth, and everyone else posting here. I've been really lucky so far, but the day isn't far off -- my mother will be 74 next month and my dad is 77. But my dad, Jesus, he heals quicker than Wolverine. He planted his garden this year, went in for quintuple bypass surgery, and was recovered enough to bring in the harvest himself.
― Danny Aioli (Rock Hardy), Monday, 21 August 2006 23:58 (eleven years ago) Permalink
― Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:04 (eleven years ago) Permalink
― Major Alfonso (Major Alfonso), Tuesday, 22 August 2006 00:14 (eleven years ago) Permalink
― Danny Aioli (Rock Hardy), Tuesday, 22 August 2006 00:17 (eleven years ago) Permalink
― Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:19 (eleven years ago) Permalink
― Danny Aioli (Rock Hardy), Tuesday, 22 August 2006 00:25 (eleven years ago) Permalink
The child unable to believe that the parent has lost power?
― Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:31 (eleven years ago) Permalink
― Beth Parker (Beth Parker), Tuesday, 22 August 2006 00:34 (eleven years ago) Permalink
― Danny Aioli (Rock Hardy), Tuesday, 22 August 2006 00:51 (eleven years ago) Permalink
― Aimless (Aimless), Tuesday, 22 August 2006 01:09 (eleven years ago) Permalink
My mother (89) has had alzheimers for about 8 years. Her body has served her well, but her brain slowly went to bits shortly after my stepfather died. Unable to manage her house anymore, my brother and I moved her to an independent living center that guaranteed access to its nursing home if and when the time came. It came about two years after the move. I live 3 hours away, but my brother lives within walking distance and visits her several times a week and we included her in family events until about a year ago when she just became unable to feel comfortable outside of her nursing home environment.
She's now almost totally deaf and has never used a hearing aid which makes any serious communication impossible. I visited last week and found her doing a crossword puzzle. We did the puzzle together for a while, but her mind kept drifting all over the place.
My wife's father (82) has Parkinson's and fell down the stairs recently. Compression fractures of three vertebrae was the diagnosis. Surgeons injected some kind of cement in his spine and he was getting about with a walker after only a few days. My wife plans to care for him in his home in the near future. He suffers from dimentia, too, but is on so many meds that I think that may be a contributing factor. This guy was an infantryman in world war II, a radio and tv personality and has had a very good life. He is loved by many people and has had countless visitors at the hospital. He is very frail now and has told me, and I'm sure others, that he knows his life is at the very end.
These are two of the coolest people that I have ever known, both with precious little time left. One knows it and one doesn't seem to. They are both receiving the best care available, but y'know sometimes that don't mean a thing. My thoughts are with all of you.
― jim wentworth (wench), Tuesday, 22 August 2006 01:27 (eleven years ago) Permalink
This. Heavy shit, huh?
― (✿◠‿◠) (ENBB), Monday, 20 August 2012 17:34 (five years ago) Permalink
― curmudgeon, Monday, 20 August 2012 18:31 (five years ago) Permalink
In darker moments, I look at my folks now (esp. my Pa who is 75 this week) and feel like the wave of their good years is just on the cusp of breaking. Not really ready for it, not at all.
― that mustardless plate (Bill A), Monday, 20 August 2012 18:44 (five years ago) Permalink
My mothers good years are most definitely past. This has become very evident as she's staying with me for a couple days and it's totally heart breaking. Also, there's some memory loss/disorientation stuff happening that's scaring the crap out of me.
― (✿◠‿◠) (ENBB), Monday, 20 August 2012 18:54 (five years ago) Permalink
so heavy i can't really talk about it
― these albatrosses have no fear of man (La Lechera), Monday, 20 August 2012 19:00 (five years ago) Permalink
Yeah. I started trying to talk about it with someone at work and couldn't really hold myself together. This is really tough. :/
― (✿◠‿◠) (ENBB), Monday, 20 August 2012 23:12 (five years ago) Permalink
Good luck Erica... luckily my parents are still mostly 'together' and my dad's problems are a result of his alcoholism rather than real mental deterioration, but it's still awful to have to deal with this stuff.
― one dis leads to another (ian), Monday, 20 August 2012 23:31 (five years ago) Permalink
yeah i'm going through this too. all the best, E x
― jed_, Monday, 20 August 2012 23:36 (five years ago) Permalink
and everyone else :/
This took up took up over 10 years of my life (from 1994 - 2008 in fact). Both my parents got ill in their early to mid-seventies, and both had dementia and a pretty terrible end in a nursing home in their late seventies.
I spend most of this period visiting at weekends, and other times - and in that rather mad space where you seem cut off from the concerns of normal life, unable to relax for a minute, and living a kind of nightmare existence that no-one else around you realises. (Nothing like the horrific life of a full-time career - but bad enough).
The only thing you can say about it is that it passes, and you realise that what felt like an endless enduring period was in the end just another temporary era.
― Bob Six, Monday, 20 August 2012 23:43 (five years ago) Permalink
Siblings help -- if you're lucky.
― a regina spektor is haunting europe (Alfred, Lord Sotosyn), Monday, 20 August 2012 23:46 (five years ago) Permalink
I'm an only child. This is the only time I've ever wished I had siblings tbh.
Thanks, guys. Things are OK and we had a really nice evening. She's staying with me until she flys back to FL on Wed. Ian - alcoholism is a factor here too in addition to a lot of other things. I guess I just really feel for my dad and am really saddened by realizing that it's only going to get worse from here and I'm afraid it's going to do so pretty quickly.
― (✿◠‿◠) (ENBB), Tuesday, 21 August 2012 00:10 (five years ago) Permalink
I feel for you, ENBB. I'm an only child too; my mom's 84 this year but still drives, takes care of her own stuff, is still sharp as ever (dad died in 2000). But I dread so deeply the coming of the signs. I can't even model it in my mind. Hugs.
― Lewis Apparition (Jon Lewis), Tuesday, 21 August 2012 00:37 (five years ago) Permalink
my mom's 84 this year but still drives, takes care of her own stuff, is still sharp as ever
That's fantastic, good for her! Mine is 74 this year but she's an old 74 and hasn't driven in at least 5 years. Anyway, like I said, we had a lovely day today. It's just a really difficult process to watch and I worry about what will happen down the line.
― (✿◠‿◠) (ENBB), Tuesday, 21 August 2012 00:53 (five years ago) Permalink
pullin for you E - us only children gotta stick together. this terrifies me too - and is a big part of what motivates me to do what I do now - but hopefully there will be a good, long time before anything really happens.
― jack chick-fil-A (dayo), Tuesday, 21 August 2012 00:58 (five years ago) Permalink
You know you have my support as another only, but I'm too much of a weakling to talk about this stuffIn earnestIn publicBeyond this
But you know where to find me offboard if you wanna talk!!
― these albatrosses have no fear of man (La Lechera), Tuesday, 21 August 2012 01:57 (five years ago) Permalink
i will say that my mom is pretty damn sharp in mind, but whenever i visit, i insist on driving EVERYWHERE. her driving scares the bejesus out of me, don't understand how she hasn't had her license taken away. and it only gets worse as she gets older.
― for reasons of sass (the table is the table), Tuesday, 21 August 2012 05:28 (five years ago) Permalink
yeah driving is often the "tipping point" of aging parents decline. really hard to give up.
my heart goes out to enbb,la lechera, ian and everybody facing this. all my middle-aged friends have ailing/aging parents right now, you guys are confronting it early like i did. these days my father in law is essentially dying, i was going to post this on the fuck cancer thread but it fits here too. he's 84, until a couple years ago was robust mentally and physically, the picture of how you'd hope to age. so it's shocking to see his rapid decline not just bodily but he's become very confused and withdrawn, barely a shell of his former self. chemotherapy is keeping him alive but at what cost? we just had our annual visit and my wife, her mom (who's a rock) and her two siblings are stressed out and struggling. not much else to say. but it's good to talk about it, in fact it's important for your - our - own mental health to let it out.
― (REAL NAME) (m coleman), Tuesday, 21 August 2012 09:39 (five years ago) Permalink
My dad had the driving decision taken out of his hands as he went blind in one eye at the start of the year, but he was getting to be quite a dangerous driver before than (he's 80) so we're really quite glad about it.
― ailsa, Tuesday, 21 August 2012 09:54 (five years ago) Permalink
even though she knows she needs them, my mom refuses to get glasses because she thinks that they make her face look weirdshe lives in fear of having her driver's license taken away from her because she is a very independent person and likes her alone time:(
― these albatrosses have no fear of man (La Lechera), Tuesday, 21 August 2012 13:24 (five years ago) Permalink
My mother-in-law has had quite serious dementia for the past six years or so. This started when she was in her early-to-mid 60s - one of the first events that really got us thinking that something was up was when she drove her car the wrong way round a large roundabout into oncoming traffic. At the moment she lives in a nursing home as is pretty much just a shell of her former self - she doesn't even know who her children are any more when they come to visit, but thankfully she does still appreciate the company which at least is one small positive that you can take away. Totally depressing though, so for anyone out there who is dealing with this right now, I can totally sympathise.
― mod night at the oasis (NickB), Tuesday, 21 August 2012 13:35 (five years ago) Permalink
My mom, turning 80 next month, has been fighting the decline, bless her. Joined the hospital wellness center, has been selling and giving away decades' worth of my dad's accumulated packratcrap, still gets out there and mows her own lawn, etc. Next week she, my daughter and probably my wife are heading off to Biloxi to the casinos. But the decline is there...bad knees, bad feet, diabetes... My sympathies to everyone having a tough go of it these days.
― Romney's Kitchen Nightmares (WmC), Tuesday, 21 August 2012 13:45 (five years ago) Permalink
My mum (68) has been dealing with my gran (88) for a long time; my gran has alzheimers. About six months ago she finally got her moved to a nursing home in the same town (200 miles from where my gran was before). Only now is she at the point where she can see any humour in the situation, which results in Facebook messages like this from my mum:
Today's visit to your gran!G. (after a bit of mumbling and searching for words) Are you my daughter?Me. Yes.Gr. Are you really my daughter?Me. Yes.Gr. I can't remember. Am I your mother?Me. Yes.Gr. Where did we live?So I started giving her a potted history of our life.GR. How do you know you're my daughter?A bit later on....Gr, Haven't I got nice legs!She thought it was quite funny that she couldn't remember things; seemed very happy and settled. The staff bore this out.
G. (after a bit of mumbling and searching for words) Are you my daughter?
Gr. Are you really my daughter?
Gr. I can't remember. Am I your mother?
Gr. Where did we live?
So I started giving her a potted history of our life.
GR. How do you know you're my daughter?
A bit later on....
Gr, Haven't I got nice legs!
She thought it was quite funny that she couldn't remember things; seemed very happy and settled. The staff bore this out.
― Sick Mouthy (Scik Mouthy), Tuesday, 21 August 2012 14:11 (five years ago) Permalink
My mom and grandma live together with mom's "girlfriend", and I moved to be closer to them and my terminally ill Dad (they were separated). Grandma is sharp as a tack and well into her 90s. Of course I love Grandma, but mom is making seeing Grandma a miserable experience.
Like I said elsewhere she is getting into that old people thing of being passive-aggressive. I know I called her a "fascist" I didn't mean it, it's that her emotional state is kind of fascist.
It's her stupid family. She wasn't raised by her own mother, she was raised by her abusive and creepy grandmother and aunt and it really shows in how she deals with stuff like death and adult responsibilities.
If anything difficult happens in her life - death or whatever - she just escapes mentally. Her mom's family had a lot of money and stuff was handled for her all her life!! She doesn't understand why other people don't have it as easy. Because of her family, she feels she has a lot of power and I can't ever suspect her of having mental problems EVER.
― โตเกียวเหมียวเหมียว aka Debriefed by David (Mount Cleaners), Monday, 17 December 2012 18:34 (five years ago) Permalink
My mom gave up driving last month. Kinda shocked, but pleased that she came to the decision herself. She's 88 and is in reasonably good health for her age - despite the piles of crap that she's hoarded (ongoing issue for her entire life). Sister is gone for several weeks so I'm on mom duty... it's extra frustrating because her hearing is so bad that she leaves the televisions on with the sound maxed-out and she can't hear the phone.
Vexing problem of the moment... Her sense of time and calendar dates are slipping, so making plans becomes a comedy of errors ("stop by this week" *does so* "what are you doing here, I said to come by next week") ad infinitum ad nauseum
― Elvis Telecom, Monday, 1 July 2013 23:40 (four years ago) Permalink
wow, that sounds like a serious challenge. i'm sorry. i have this thread bookmarked and it popped up just as my parents arrived yesterday for their first visit in 3 years. they are aging. my mom is in great shape (in spite of some health issues this year) but my dad keeps looking and acting less like himself, which is thrown into stark relief when we look at old pictures together.
― free your spirit pig (La Lechera), Tuesday, 2 July 2013 14:15 (four years ago) Permalink
I am going to visit my parents this weekend and I think that I'm actually going to have to ask them point blank what they want me to do for them if they ever get dementia or need care etc. My mom is in bad shape and her memory is already slipping and my biggest fear is that my dad dies first (though this is prob unlikely you never know) and I'm left to make decisions for/about her. I want to know now and while I know she's not going to want to talk about this I'm going to make them because I'm an only child and they have no other relatives here to help and I can't handle the stress and weight of this alone without knowing what they want.
― Airwrecka Bliptrap Blapmantis (ENBB), Tuesday, 2 July 2013 14:19 (four years ago) Permalink
Just to share my own personal woes on this thread --
My father nearly died last week; he collapsed on his way to the bathroom in the middle of the night. The ambulance came and got him to a hospital and it turned out he had two massive ulcers in his stomach and large intestine. This comes about 6 weeks after a surgery to biopsy a growth in his spinal cord.
Yesterday morning, recovering from the emergency surgery to stitch up the ulcers, he had a major heart attack and is in the hospital with a breathing tube, heavily sedated etc. On our way up to Rhode Island yesterday our van broke down on the Triboro Bridge -- shocks gave out and started to rub against the front tires, causing lots of burnt rubber smoke. We got it towed back to your neighborhood (luckily we weren't halfway through connecticut) and it's going to be repaired this afternoon, $800 later. I'm incredibly worried about my dad. The doctors are not sure how to treat him; they can't give him the usual blood thinners and medications because of the ulcers and recent surgery. I wish so badly I was there. And now I'm worried about the drive up, even though the car is getting fixed, I have a strong distrust of automobiles... Just don't know what to do. It's bad when my aunt is telling me to go straight to the hospital and bring his 'paperwork' (read: living will.)
So scared :\
― i guess i'd just rather listen to canned heat? (ian), Tuesday, 2 July 2013 17:06 (four years ago) Permalink
I'm sorry to hear all of that.
― Tottenham Heelspur (in orbit), Tuesday, 2 July 2013 17:37 (four years ago) Permalink
me too. suerte, ian.
― free your spirit pig (La Lechera), Tuesday, 2 July 2013 18:41 (four years ago) Permalink
Same here, hang in there.
― dow, Thursday, 30 November 2017 15:42 (two months ago) Permalink
― mookieproof, Wednesday, 6 December 2017 19:00 (two months ago) Permalink
― kim jong deal (suzy), Wednesday, 6 December 2017 19:02 (two months ago) Permalink
really lovely obit; I guy I would definitely kiw
― mom tossed in kimchee (quincie), Friday, 8 December 2017 01:45 (two months ago) Permalink
lovely indeed, thanks for letting us read it.
― dow, Friday, 8 December 2017 04:22 (two months ago) Permalink
― Squeaky Fromage (VegemiteGrrl), Friday, 8 December 2017 05:02 (two months ago) Permalink
Saddest thread. Sorry Mookie.
― albvivertine, Friday, 8 December 2017 05:55 (two months ago) Permalink
So just went for a quick visit to my aging parents (met my mum in central London to help her with food shopping ahead of xmas) and more importantly to see my father, who I knew had been ill with what sounded like - in phone conversations - something viral (nausea, some vomitting), eating a bit but not much and living on water and tea. The doctors haven't been to ascertain exactly what it is (only a blood test so far) with a "there is nothing wrong" from it.
I knew he had lost about weight but I was mildly startled. I think its about 10 pounds off, legs are thinner. He can walk but may need a walking stick at this rate.
He is having an X-ray on Thursday and an endoscopy on the 5th Jan (that's three weeks away) then talking to a consultant who is going to take a view on it.
This all started after they came back from a summer in India so I wonder if he picked something up that will not shake off. If he is weaker and with this cold weather too...I have to say as I saw him later on the phone (with family who are calling even more to find out how he is) I just...pictured myself reading an eulogy at his funeral. Totally caught me.
I just hope it isn't the last xmas.
I HATE that this is three fucking weeks away I just want it done NOW. We were discussing a private option but he doesn't think its that far away blah. I dunno, hands are tied praying the bad thing doesn't happen otherwise its damage limitation in A&E. Fuck.
― xyzzzz__, Tuesday, 19 December 2017 21:21 (two months ago) Permalink
My mom has rallied a bit since my last bulletin to this thread. She'll certainly last through Christmas, and probably has months more to run if she doesn't get ill. But she's obviously done engaging with life in any meaningful way.
She doesn't recall anything other than the deep past and has no interest in that either. I visited her weekly up until mid November and she greatly enjoyed listening to me, but her participation was limited to a few words here and there. She no longer has an opinion on anything other than how pleasant it is to see her family. She's very tranquil and that's a good thing.
― A is for (Aimless), Tuesday, 19 December 2017 21:59 (two months ago) Permalink
My mum was rushed to hospital on Saturday and had surgery yesterday: she'd been unwell for weeks and convinced herself she had stomach cancer. Actually just a blocked bowl (just!) and double hernia (just!).
Visited her yesterday and she's doing pretty well. Should come home today.
― Hey Bob (Scik Mouthy), Wednesday, 20 December 2017 07:55 (two months ago) Permalink
I had planned for a month for my mom to take the train today and come to my house for Xmas. Opportunity for her to see her granddaughter and meet for the first time her 3-months old grandson. But in classic depression/bipolar behavior, she bailed out two hours before the train departure (“what am I gonna do at your place?”). So gutted
― licorice oratorio (baaderonixx), Wednesday, 20 December 2017 10:23 (two months ago) Permalink
Good thoughts going yr way, xyzzzz - horrible to have that consultation hanging over Christmas.
― Akdov Telmig (Ward Fowler), Wednesday, 20 December 2017 10:59 (two months ago) Permalink
― xyzzzz__, Wednesday, 20 December 2017 11:46 (two months ago) Permalink
best wishes for yr mum Scik <3
― Squeaky Fromage (VegemiteGrrl), Wednesday, 20 December 2017 17:50 (two months ago) Permalink
Solidarity with Scik and everyone who's in this thread.
Obit lovely. Would have loved to have talked science with him.
― Elvis Telecom, Monday, 25 December 2017 06:13 (one month ago) Permalink
On Friday, in –10F weather, my mom called me to say that my dad had a stroke, but she'd decided to let him sleep and instead of calling an ambulance. My wife and I drove an hour in our subcompact auto at the height of the blizzard, w/ 50 mph winds to find: there had been no stroke. Dad had a virus. Mom was deep in denial about dad's still-undiagnosed Parkinsonianism, and claimed the symptoms (inability to dress himself, trouble eating, impaired walking, etc.) were recent and resulted from a stroke, and had appeared only in the last two days only. But... they're years old. FWIW, Dad also denies the symptoms. He's fine. However, dad's capable of covering up his infirmities (so he thinks) and my mom won't challenge him because she doesn't want to have to deal w/ him. Meanwhile, I learned my mom did *not* try to help my dad when he fell on the ground a few days ago (and she is physically a LOT more capable than him), and only helped him get dressed when he begged for it. I... don't know what to do about them.
I'm not ready to say goodbye to my parents, but I think that even if they stick around bodily my time with their minds is ... dwindling.
― rb (soda), Monday, 8 January 2018 23:20 (one month ago) Permalink
i'm very sorry to hear all that. wishing you strength.
― Chocolate-covered gummy bears? Not ruling those lil' guys out. (ulysses), Tuesday, 9 January 2018 04:59 (one month ago) Permalink
― Squeaky Fromage (VegemiteGrrl), Tuesday, 9 January 2018 06:28 (one month ago) Permalink
we officially have "caregiver fatigue" :(
father-in-law's condition is deteriorating, we started having home care people come a few times a week for various things but I'm not sure how long we can keep him living with us at this rate. he got nauseous last night and my wife had left her phone downstairs, he called her sixteen times rather than make any noise or knock on a door. he tells different providers different things, fired one nurse without telling us, and is disturbingly focused on his new tiny diminishing 1-time scrip of oxy.
― sleeve, Tuesday, 9 January 2018 15:47 (one month ago) Permalink
oh dearsympathies to everyone
― weird woman in a bar (La Lechera), Tuesday, 9 January 2018 15:54 (one month ago) Permalink
I'm so sorry everyone. This is so tough - all of it.
I spent the holidays with my dad, the first after my mom's death. They were OK and better than I feared overall but still hard. I'm still processing her passing and am both angry and sad now for a lot of different reasons too complicated to go into though I've spoken about them here and elsewhere on ILX before. Weird things happen and sometimes it just hits me like the other day when I was driving and for some reason I remembered the way her body looked when we went back to the hospice after getting the call that she died and I just started sobbing.
― Benson and the Jets (ENBB), Tuesday, 9 January 2018 16:36 (one month ago) Permalink
My dad seems to be doing OK which is nice but I do worry about his health deteriorating and him being alone.
― Benson and the Jets (ENBB), Tuesday, 9 January 2018 16:37 (one month ago) Permalink
R - that sounds really really tough and I'm sorry you're going through it. I don't have any advice to give as I also struggled with not entirely dissimilar situations and after a while just stopped trying to intervene because I realized that in my parents case they were going to do what they wanted regardless.
― Benson and the Jets (ENBB), Tuesday, 9 January 2018 16:38 (one month ago) Permalink
mother visited recently and i had the first moment of NOT IMMORTAL and have decided i'm going to be super nice to her from now on
― Chocolate-covered gummy bears? Not ruling those lil' guys out. (ulysses), Wednesday, 10 January 2018 04:56 (one month ago) Permalink
rb - I went through very similar situation, with my mom refusing to acknowledge the effects of parkinson on my dad (saying he was using the illness to justify his laziness...). If you father's not yet medicated, bear in mind that pills can really slow down the progress of the disease. I empathise with spouses who need to downplay/deny or detach themselves from the domestic horror of neurodegenerative diseases but if possible in any way you should convince them to get nurses and outside help asap. I only wish I'd pushed for this earlier with my dad (it ended up - predictably - wrecking my mom)
― licorice oratorio (baaderonixx), Wednesday, 10 January 2018 14:43 (one month ago) Permalink
To continue my previous post from around xmas results have now come - we are onto biopsy for "complcations in the pancreas and kidney" so that's that. Its in 1-2 weeks, results would be a week after so we'll know, at most, by early Feb.
My father sounds weak and diminished, mother was crying on the phone (not something you forget when you hear it), younger brother is in a panic and upset leaving me with having to repress whatever it is I'm feeling. In some ways that's fine, for now. Fighting words around being positive are thrown in...I nod away but keep thinking back to that moment when I saw him on the phone...the gut instinct was hard to shake then. I'll keep quiet on it, post it here.
― xyzzzz__, Friday, 12 January 2018 16:34 (one month ago) Permalink
mother was crying on the phone (not something you forget when you hear it)
my heart now drops whenever i see i have a voicemail message
<3 best to you xyzzzz
― mookieproof, Friday, 12 January 2018 16:39 (one month ago) Permalink
thinking of you, julio
― mark s, Friday, 12 January 2018 16:57 (one month ago) Permalink
― xyzzzz__, Friday, 12 January 2018 22:15 (one month ago) Permalink
my mom has a lot of opinions about traffic patterns
― mookieproof, Friday, 19 January 2018 22:32 (one month ago) Permalink
So its cancer of the liver however it seems to be a few spots of it (its apparently a rare form of it), it is curable and treatment will start soon. No need for surgery, just injections. Talking to a specialist next week.
Not at all over. This has made me face things, not least the ongoing sadness that blocks your insides (even more so than usual).
― xyzzzz__, Monday, 29 January 2018 20:20 (three weeks ago) Permalink
Sending best indeed. A very good friend lost her dad a couple of years ago and her mom is starting to fail mentally; based on her notes to me, the tangle of issues involved with her siblings on what to do has been awful. Makes me grateful for where I am so far, but I wonder what the future will hold.
― Ned Raggett, Monday, 29 January 2018 20:48 (three weeks ago) Permalink
thinking of you julio: the liver is an organ it's hard to do without but also one with unusual capacity to regenerate so best of luck to yr dad and yr family x
― mark s, Monday, 29 January 2018 21:31 (three weeks ago) Permalink
Thanks, appreciate the message
― xyzzzz__, Monday, 29 January 2018 21:41 (three weeks ago) Permalink
So...the doctors looked at the results again: my father has late stage cancer (and its a rare form, whose name I can't recall, around 2% of all cancers) (actually in a bit of the pancreas and the small intestines). It will be determined next week but he might be too weak for chemo too - they will try to strenghten him but if he cannot go through chemo then that gives him a few months. With a successful chemo its 2-5 years. Its devastating, he never had much of a retirement.
Had a deep conversation with my mother today and her strength through all of this is something else. The situation might have not been there for me to see it, but I was blind to it too - she is incredible. Its my mission to make sure she will be cared for, and I want to deepen our relationship too.
― xyzzzz__, Saturday, 10 February 2018 23:38 (one week ago) Permalink
Strength and love to you all, sir.
― Ned Raggett, Sunday, 11 February 2018 00:26 (one week ago) Permalink
― mookieproof, Sunday, 11 February 2018 00:31 (one week ago) Permalink
Best to you and your family xyz
― papa poutine (∞), Sunday, 11 February 2018 00:37 (one week ago) Permalink
i am so sorry
― estela, Sunday, 11 February 2018 02:40 (one week ago) Permalink
sorry to hear this, dude: best wishes and good luck and let me know if there's anything i can do IRL (including talking obv)
― mark s, Sunday, 11 February 2018 10:37 (one week ago) Permalink
sounds like you've got some good perspective. thinking of you, j
― ogmor, Sunday, 11 February 2018 10:44 (one week ago) Permalink
(and Mark thank you for such a kind offer I will let you know)
― xyzzzz__, Sunday, 11 February 2018 20:05 (one week ago) Permalink
My mother, 85 y.o., has been in hospital for two months now. It is only in the last week or so that we've had the distressing experience of her not recognising us -- NB this is not dementia, but rather the effects of a urinary tract infection she contracted *in* hospital, which apparently causes severe delirium which can last for a couple of weeks after the infection itself has gone away. She is hardly eating and is being fed intravenously off and on, time before last I visited (Thursday) she drank some vitamin enriched milkshake from a sippy cup, but on Saturday wouldn't even accept water.
Track back to when she was admitted, just before Christmas...we'd just flown out to the in-laws in Poland, we receive the news via SMS from my sister -- the carer who normally turns up to get her out of bed found she hadn't gone to bed but had fallen asleep in an armchair (second time this had happened). She was admitted with low oxygen levels and a chest infection. On New Year's Eve she was transferred to a different hospital for rehabilitation because although the initial problems had cleared up, while she'd been there her walking had really deteriorated to the extent that she could no longer walk unaided. Little or no progress was made in the rehab unit -- the deterioration in mobility was, it appeared, something of a mystery to the medics insofar as they couldn't even work out if it had a physical or psychological cause. Then the infection happened leading to her being transferred *back* and...we are where we are.
― Grandpont Genie, Monday, 12 February 2018 15:12 (one week ago) Permalink
Yes, urine infections can cause the oldsters to go gaga, we had to get an emergency doctor out for my mother when I was last visiting because she fell asleep and woke up on another planet - the doctor gave her some antibiotics and she was back to (what these days passes for) normal the next morning.
― Video reach stereo bog (Tom D.), Monday, 12 February 2018 15:17 (one week ago) Permalink
There was one amusing incident, after the emergency doctor had asked my mum the standard questions they ask to test for dementia - what month it is, what's your address etc. - which, despite her urinary infection addled state, she somehow had managed to pull herself together to answer, the doctor asked what medication she took and mum went into the kitchen brought a box of pills through and said, "I take one of these a week before breakfast".
― Video reach stereo bog (Tom D.), Monday, 12 February 2018 15:26 (one week ago) Permalink
My mother-in-law has also had the weirdness as a result of a UTI, she thought the doctors were trying to kill her, set fire to her, throw her out a window, poison her food, etc. Cleared up after a dose of antibiotics (which took ages to persuade her to take since she thought they were poison)
― ailsa, Monday, 12 February 2018 15:58 (one week ago) Permalink
I'm sure this is connected to oldsters' aversion to drinking water.
― Video reach stereo bog (Tom D.), Monday, 12 February 2018 16:09 (one week ago) Permalink
my grandfather, who passed away a few months back, was in an assisted living place for a few years and ended up having a UTI that progressed to sepsis, leading to a brief hospital visit, multiple times. I think some people are more prone to it than others, but sepsis is one of the main causes of death for the elderly. your body just doesn't work that well.
― mh, Monday, 12 February 2018 16:12 (one week ago) Permalink
*takes notes on UTI-insanity connection*
having the 86 y.o. father in law is working out OK these days, really. no crises to report, thankfully.
― sleeve, Monday, 12 February 2018 16:13 (one week ago) Permalink
Tonight I saw a doctor who told me that the UTI insanity can last 6 months.... :-(
― Grandpont Genie, Wednesday, 14 February 2018 22:09 (six days ago) Permalink