Hardcore Migraine Sufferers Unite

They also said my previous dosage for Sumatriptan was too low, that I was taking an amount that would be prescribed for a teenager ¯\_(ツ)_/¯

I'm not a fan of triptans myself. I took sumatriptan for years and it gave me rebound headaches and made me feel super weird whenever I took it. Hope the new one works for you though.

Now they've got me on Ubrelvy, which is new and expensive and also seems to trigger rebounds, though apparently that's very rare and I'm just unlucky. It doesn't act as instantly as sumatriptan, but it also doesn't have any noticeable side effects, which is really nice.

That said, I'm home from work today because my migraines don't seem to want to respond to meds this week. It's been a relatively good couple of months so I was due for it.

sumatriptan has never worked instantly for me, at least not in pill form. i can usually time it to like 2.5 hours on the dot. no side effects, really magic, but day still half ruined.

Sumatriptan started out being pretty instant for me, but as my body got used to it, it got much slower and sometimes wouldn't work at all. At one point I had the injectable kind in case I needed it to be fast-acting. But whether it worked or not, it always made me feel slightly poisoned. Glad to hear there are people it doesn't have side effects for.

I've got Sumatriptan injections for Cluster Headaches and they really work (unless I have more than two headaches in a day and so can't take).

I've an acquaintance who takes Eletriptan (Relpax) for migraine and it seems effective at treating pain. They recently tried a new injection (not sure of the name) which reduced the headaches but had loads of side effects on their stomach. In the UK and they had to previously have tried 3 different treatments before they could try the injection.

yeah there’s also something called like… anti-CRG? something like that? that you can only have if you’ve tried all the other shit.

https://www.nationalmigrainecentre.org.uk/understanding-migraine/factsheets-and-resources/anti-cgrp-treatment-for-migraine/

It depends, at least in the US. Ubrelvy is an anti-CGRP medication, and I didn't need to fail all the others to be prescribed it, but if I want one of the preventive ones like the aimovig shot, then I will have to try topomax and an antidepressant first.

what was it like?

My new migraine doc has also suggested some or all of the following, as preventative, in addition to the Candesartan

- Magnesium supplements. Magnesium citrate, glysinate, oil spray or epsom salts

- Vitamin B2 (riboflavin) - 1 400mg tablet once a day

- Co-enzyme Q 10 - 100mg THREE times a day for a minimum of 3 months

- Vitamin D - 3000-5000iu daily

- Migraea probiotic

Needless to say I hate my migraines and want them gone but I am a little reluctant to start a regimen of like many pills every day

Eletriptan, which last longer and works faster. They are also recommending that whenever I take a triptan I also take 900mg of aspirin, two paracetemol and 10mg of Metaclopramide , which will act to flush the triptan away from my stomach and into my bloodstream more quickly. I am excited!

I got a chance to try this new regime and it worked great - headache gone in about 40 minutes

My migraine doc also put me on a lot of supplements - mainly Sam-E, Boswellia, and B-12 - but I'm really bad at taking any except the Sam-E regularly. It also turns out I'm sensitive to magnesium and it makes my heart skip, which is frustrating as it's in a lot of supplements in trace amounts, so if I take too many assorted supplements at once I start to feel it. So the many supplements approach is not for me, but I understand it works for a lot of people. My uncle swears by riboflavin.

I've decided that I'm only going to take one supplement at a time so that I can tell if any of them have any effects. I've started with the riboflavin and it has turned my pee EXTREMELY yellow.

(No other effects noted...)