fuck cancer

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ENBB I can't seem to get ilxmail to work on my phone. It keeps telling me I'm getting the captcha wrong. I have a B&W question and if u feel ok abt emailing me direct my address is joncroaker ~at~ gmail

before you die you see the rink (Jon Lewis), Monday, 28 July 2014 14:51 (eleven years ago)

Just did :)

Airwrecka Bliptrap Blapmantis (ENBB), Monday, 28 July 2014 15:36 (eleven years ago)

U are kind.

before you die you see the rink (Jon Lewis), Monday, 28 July 2014 15:47 (eleven years ago)

ilx mail Nevers works iirc

your favourite misread ILX threads (darraghmac), Monday, 28 July 2014 16:10 (eleven years ago)

Headed to Boston for my third consecutive weekend. Things are not good, but MIL is in a 'skilled nursing facility' in Roxbury rather than the hospital so that's something. Appetite is a real problem; she's not eating much despite her onco's exhortations. My wife has set up a medical w33d appt but is really intimidated by all the choices of different strains you can get and wants to make the right choice. MIL has OCD and is a v high anxiety person so that means we want a type with low THC right? Does anyone have any specific consumer advice on this? They seem to have figured out the right pain cocktail at least for now so this will be aimed at getting her eating.

before you die you see the rink (Jon Lewis), Friday, 8 August 2014 23:11 (eleven years ago)

wow I just went down a serious Google rabbithole there

iirc you want high CBD/low THC, yes

there are some fairly informed opinions here:

http://www.drugs-forum.com/forum/showthread.php?t=230396

good luck man, sorting through all those can be confusing

sleeve, Saturday, 9 August 2014 00:02 (eleven years ago)

I cannot answer those questions but I do know that, for my mom, she would eat occasionally and ten minutes later vomit, she could not digest food anymore. It really didn't matter if she was hungry or not.

What happens when she does eat? Is it digested?

shower cretin (brownie), Saturday, 9 August 2014 00:10 (eleven years ago)

She is taking pancreatic enzyme before eating, and yes when she does eat she digests it. But says eating doesn't make her feel well.

Thanks for that link. It's comical how little I know about this subject even in a recreational context

before you die you see the rink (Jon Lewis), Saturday, 9 August 2014 00:47 (eleven years ago)

i would hope that the person yr wife meets with will be at least at little knowledgeable in that area

if you don't get answers, dm me & i can ask my brother in law. he took care of the w33d for both my mil, and his uncle (both seniors, both had late stage pancreatic cancer) - he's a w33dhead & a paramedic so is p knowledgeable on both sides

SEEMS TO ME (VegemiteGrrl), Saturday, 9 August 2014 01:15 (eleven years ago)

Yeah you can hit me up too; my bro is very very up on the various strains for various needs. I'm sure your w33d person will also know what best to use for appetite stimulation.

mom tossed in kimchee (quincie), Saturday, 9 August 2014 03:07 (eleven years ago)

Thx VG. If I DM u it may be through FB since I only have my phone with me and I haven't had much luck using ilxmail on phone.

Quincie for the same reason-- if u don't mind asking yr bro for his take u can email me at the address I gave ENBB a few posts up.

I don't loves peoples but I loves ilxors.

before you die you see the rink (Jon Lewis), Saturday, 9 August 2014 03:20 (eleven years ago)

<3

SEEMS TO ME (VegemiteGrrl), Saturday, 9 August 2014 03:43 (eleven years ago)

Ugh this is dumb and frustrating. Mrs Jon found a weed strains info app on iOS called leafly and did a lot of research on there last night while I was en route. We are leaning toward a strain called Dr Who (lol) which is said to be an appetite stoker with minimal anxiety and paranoia effects. But its weird and sort of lame how it works in MA, the patient obtains a card from the cannaMed center but then instead of going to an actual dispensary you contact one of this licensed network of "caregivers" aka dealers who will come to your house to sell you stuff. We have all these questions and it would be so much better to go to a dispensary and be able to ask someone about things. Instead wife has written emails/left msgs to 10 of these dudes who operate under rather lol dba names and only one has called her back in 5 hours, and that one doesn't have edibles.

before you die you see the rink (Jon Lewis), Saturday, 9 August 2014 20:26 (eleven years ago)

Oh yikes that sucks! Is vape an option rather than edibles?

mom tossed in kimchee (quincie), Sunday, 10 August 2014 00:48 (eleven years ago)

It's def a second choice if we can't get edibles. I spoke to a very nice young man at 'Vape Daddy' in Framingham this evening who told me which devices are good. they're not cheap these vaporizers!

My wife comes back home for a little while as of Monday night so we are trying to get this squared away before then...

before you die you see the rink (Jon Lewis), Sunday, 10 August 2014 01:00 (eleven years ago)

Oh geez if you were in CA I'm sure bro could set you up with a loaner vape (I think the dispensaries he worked with offered this?). Will call him tomorrow to ask more about strains. Just talked with a friend whose brother-in-law was in home hospice (colon cancer) with all the opiates in the world but still had a lot of anxiety; some med mj was super helpful for him. His mom inhaled it and exhaled into his 02 mask so, er, kind of vape-ish, I guess?

mom tossed in kimchee (quincie), Sunday, 10 August 2014 01:14 (eleven years ago)

my mil used a vaporizer with a big plastic bag - fill the bag with smoke from the vaporizer & suck a few hits from the bag (kinda like hippies with nitrous balloons lol). she didn't need very much

SEEMS TO ME (VegemiteGrrl), Sunday, 10 August 2014 01:19 (eleven years ago)

My mom is also struggling with appetite now. I was told her appearance had changed since July 4th weekend from the resulting weight loss, but I was not really prepared for this. She's had a bit of a Sonic slush drink that we got her this weekend, and that is it. She now also needs fluid drained from around her lung every afternoon. I don't know how people can be so brave. Also, fuck cancer obv.

Peeking at Peak Petty (Sufjan Grafton), Sunday, 10 August 2014 02:09 (eleven years ago)

Aw man :(
Is she still on the clinical trial?

before you die you see the rink (Jon Lewis), Sunday, 10 August 2014 03:07 (eleven years ago)

it will be reviewed, but she will likely be taken off that trial. the only hope left is another trial if she's eligible for any. I worry that the progression of her illness and the resulting complications make her ineligible for most trials now.

Peeking at Peak Petty (Sufjan Grafton), Sunday, 10 August 2014 03:29 (eleven years ago)

I hope she can hang on until the wedding in october at least

Peeking at Peak Petty (Sufjan Grafton), Sunday, 10 August 2014 03:31 (eleven years ago)

but she's fought harder than I ever could, so I'm not asking for anything more from her with that hope. good luck finding a good medical mj for your mil, Jon. it sounds like a good option.

Peeking at Peak Petty (Sufjan Grafton), Sunday, 10 August 2014 03:49 (eleven years ago)

Strength to you and your mom SG, and whatever kind of luck governs this blighted byway.

We got the hookup finally. We are now "waiting for the man" at a Papa Gino's down the block from the nursing home. He's bringing cookies, tongue drop tincture, basically just what we wanted. Only 2 out of 11 of these guys replied to my wife.

MIL is super nervous and thinks we are gonna get arrested. :( Unfort the law dictates she has to meet the person face to face.

before you die you see the rink (Jon Lewis), Sunday, 10 August 2014 16:47 (eleven years ago)

three weeks pass...

My friend fighting stage 4 melanoma just posted this message:

"So the verdict today at MD Anderson was that all the tumors have shrunk significantly. So, With minor surgery to get the rest of the tumors out, I will be in remission. A few months ago when I found out the tumors came back I felt hopeless and out of control of my body. A lot of cancer treatments are based on "try it and see" this causes a lot of anxiety for the patient. In most cases nothing works. I do not wish this type of hopelessness on anyone. So to celebrate my small victory I skated at the skate park in Spring, Texas."

EZ Snappin, Saturday, 6 September 2014 03:57 (eleven years ago)

awesome <3

SEEMS TO ME (VegemiteGrrl), Saturday, 6 September 2014 06:04 (eleven years ago)

Right on, man.

Rand McNulty (Jon Lewis), Saturday, 6 September 2014 12:48 (eleven years ago)

Since my mom stopped radiation she's lost 20 pounds in about 6 weeks which doesn't sound right. She's also in agonizing pain. As such, she went to the dr two days ago and yesterday was sent for a full body CT scan. She gets the results at 3:30 today. Pretty nervous. :/

Benson and the Jets (ENBB), Thursday, 11 September 2014 14:57 (eleven years ago)

Oh gosh E my thoughts are with you today.

My MIL is in hospice in Sudbury and not doing terribly well. Her pain is mostly under control but that's all they can really do at this point. I'm going up there tomorrow...

Rand McNulty (Jon Lewis), Thursday, 11 September 2014 15:13 (eleven years ago)

My thoughts are with you both.

EZ Snappin, Thursday, 11 September 2014 16:13 (eleven years ago)

^^^

Bitterer than Bitter (Sufjan Grafton), Thursday, 11 September 2014 16:37 (eleven years ago)

otm

difficult-difficult lemon-difficult (VegemiteGrrl), Thursday, 11 September 2014 16:56 (eleven years ago)

thinking of you, hoping for the best

difficult-difficult lemon-difficult (VegemiteGrrl), Thursday, 11 September 2014 16:56 (eleven years ago)

The hospice nurses think it might be imminent. Moved up my departure time from this evening after work to right now. Sitting on the bus. It is a bus.

She is more or less constantly sedated now and is also on oxygen and only semi coherent. My wife stayed up at the facility all night with her.

:(

Rand McNulty (Jon Lewis), Friday, 12 September 2014 13:54 (eleven years ago)

I'm so sorry Jon. Thoughts with you and your wife. You know how to reach me if you need anything at all.

EZ Snappin, Friday, 12 September 2014 14:00 (eleven years ago)

Best indeed to you all and to ENBB too.

Ned Raggett, Friday, 12 September 2014 14:22 (eleven years ago)

Just talked to my wife, her mom is a little more stable this morning. Ill get there mid afternoon. Also, bolt bus wifi does not like Zing.

Rand McNulty (Jon Lewis), Friday, 12 September 2014 14:38 (eleven years ago)

my thoughts are with all y'all
hope everything is peaceful

cross over the mushroom circle (La Lechera), Friday, 12 September 2014 14:39 (eleven years ago)

<3

Rand McNulty (Jon Lewis), Friday, 12 September 2014 14:40 (eleven years ago)

thinking of you, jon

difficult-difficult lemon-difficult (VegemiteGrrl), Friday, 12 September 2014 15:12 (eleven years ago)

two weeks pass...

oof friend just diagnosed with cervical cancer

get those HPV innoculation shots, girls!

Οὖτις, Friday, 26 September 2014 18:03 (eleven years ago)

my mother in law is still hanging in there, I should mention. Very skeletal, very weak, not so lucid (though small amounts of the cannabutter are helping with that) but alive. She needs so much help now that my wife and her sister don't feel okay about leaving her solely under the attention of the home when she's awake-- one of the two of them is always there from about 8 am to almost midnight.

von Daniken Donuts (Jon Lewis), Friday, 26 September 2014 19:42 (eleven years ago)

I'm at an oncology center for a checkup on my white blood count. Thought it was going to be a regular doctors office but it's a full blown chemo center.. So many gaunt faces :(

panettone for the painfully alone (mayor jingleberries), Friday, 26 September 2014 20:47 (eleven years ago)

two weeks pass...

sorry about the spammy self-promotional content of this - and i know you all have more than enough problems of your own to deal with - but i'm going to be running a 100 mile trail race this weekend and trying to raise some money for my son's schoolfriend in the process. i did post about her on this thread previously, but she had a tumour in her stomach that the health service here haven't been able to treat successfully and really her hopes now lie in getting on some sort of experimental treatment programme, possibly in the US, which unfortunately is quite an expensive business. she's just coming up to her ninth birthday and has been battling with this for about the last three years. god knows how her family are getting through this, but you just have keep on going i guess. anyhow, just on the off-chance that anyone wants to help by sponsoring me, here's her fundraising page:

http://uk.virginmoneygiving.com/team/NiamhsFund

and again, sorry to bother you all and hope that things are going okay for you folks out there

john wahey (NickB), Monday, 13 October 2014 20:18 (eleven years ago)

Don't know if this belongs here or in the curse cancer thread, but since fuck or curse cancer, I'll put it here. Anyone else following the artificial turf controversy? I mean, it's always been controversial, but there's a reported story going around about a soccer coach's serious suspicions that the recycled rubber tires used in some (all?) turf is not only carcinogenic, but actually causing cancer in kids playing soccer, particularly players who do a lot of diving, getting mouthfuls of the rubber pellets:

http://www.nbcnews.com/watch/nightly-news/does-artificial-turf-present-a-health-risk-339753027899

There is a ton of confirmation bias at work here. If you look for soccer players who play on turf and have cancer, you will find a few. If you look for carcinogens near your kids, you will find them. Etc. Likewise, just because something is banned in some places does not mean it's necessarily dangerous (see also: GMOs). But along the lines of GMOs, it is fair to suggest not enough research has been done into the matter, and also like GMOs, it affects so many it is probably worth fast-tracking some more belated research into the matter.

Josh in Chicago, Wednesday, 15 October 2014 13:34 (eleven years ago)

RIP. Nothing about this was fair or acceptable.

a drug by the name of WORLD WITHOUT END (Jon Lewis), Thursday, 23 October 2014 22:38 (eleven years ago)

I'm sorry, Jon.

I can't make my waterface turn into a *fart* (Sufjan Grafton), Thursday, 23 October 2014 23:04 (eleven years ago)

fuck cancer

I can't make my waterface turn into a *fart* (Sufjan Grafton), Thursday, 23 October 2014 23:05 (eleven years ago)

<3 jon, I'm so sorry

difficult-difficult lemon-difficult (VegemiteGrrl), Friday, 24 October 2014 02:29 (eleven years ago)

Damn, Jon. I'm sorry.

how's life, Friday, 24 October 2014 11:10 (eleven years ago)

Crushing. My condolences.

Ned Raggett, Friday, 24 October 2014 11:33 (eleven years ago)


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